Covid-19 patients are doing their own research
Citizen science, the name given to a range of scientific projects in which patients participate, covers myriad experiences.
(Bloomberg)
Amy Dockser Marcus
, The Wall Street Journal
To advance scientific knowledge of the disease, lay people are organizing to generate data about their experiences
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A month after her Covid-19 diagnosis last March, Lisa McCorkell wanted to know why she was still struggling with a cough, shortness of breath and other debilitating symptoms. Her doctors didn’t have answers, so she and a group of other Covid patients took matters into their own hands. They formed a research group on a Slack channel and launched their own study.
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Children with inflammatory bowel disease (IBD) who develop COVID-19 generally fare quite well with the infection, having low rates of hospitalization and little mortality. That was the encouraging message from a new analysis of data from an international registry that currently includes 4,578 cases, according to Michael Kappelman, MD, of the University of North Carolina at Chapel Hill.
Of the total cases of patients with IBD and COVID-19 reported to the SECURE-IBD database, only 29 were in children under age 10. Of these, two (7%) were hospitalized (most often from the complication of multisystem inflammatory syndrome) and none died.