Here's where you can get Kildare photographer Pat Tinsley's fundraising calendar
Full list of stockists
Newbridge Silverware
The Kiosk Flowers & Giftware, Newbridge
Cross SuperValu, Newbridge,
Centra Highfield, Newbridge
€12 for one, 2 for €20
All support appreciated!
Read Pat's story below:
Having waited for two and a half years since his diagnosis with hATTR Amyloidosis, Kildare photographer Pat Tinsley is gutted to learn that the HSE Corporate Pharmaceutical Unit (CPU) is not now going to include Amyloidosis and the purchasing of Patisiran at next week’s scheduled meeting of the HSE Drugs Group.
To say Pat and similar patients who live with the degenerative and debilitating illness are gutted, is an understatement. Pat and one of his brothers participated via Zoom with the Rare Disease Technology Review Committee (RDTRC), several weeks ago, a committee chaired by Dr. Jerome Coffey.