In an exclusive interview with
Gulf News, Dr Maryam Mohammad Al Matar, founder and chairperson of the UAE Genetic Diseases Association, answered a range of questions of rare diseases and how to identify them:
What is a rare disease?
A rare disease is a health condition that affects a small number of people compared with other prevalent diseases in the general population. To date, 8,000 distinct rare diseases have been documented, of which 80 per cent have a genetic component. Approximately 75 per cent of the population affected by rare diseases are children, 30 per cent of whom die before the age of five.
MUSCAT: Dr Arwa bint Zakaria al Riyamiyah, senior consultant haematology at the Sultan Qaboos University Hospital and director of the haematology programme at the Oman Medical Specialty Board (OMSB), received the Harold Johnson Award from the International Society of Blood Transfusion (ISBT).In comments to Oman News Agency (ONA) Al Riyamiyah said that the.
The General Directorate of Health Affairs in Riyadh said in a statement that the accreditation is granted to blood banks that adhere to internationally recognized AABB standards in terms of quality management systems and operational processes.