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Press Release – Rare Disorders NZ Rare Disorders NZ (RDNZ) supports Patient Voice Aotearoas nationwide Lie Down for Life to call for better access to modern medicines for genetic, undiagnosed and rare disorders. Anyone, anytime, could find themselves or a loved one having …
Rare Disorders NZ (RDNZ) supports Patient Voice Aotearoa’s nationwide ‘Lie Down for Life’ to call for better access to modern medicines for genetic, undiagnosed and rare disorders.
“Anyone, anytime, could find themselves or a loved one having to cope with the symptoms of a genetic rare disorder,” says RDNZ Chief Executive Lisa Foster. “It makes no sense to provide access to medicine based on greatest numbers. All children and adults deserve access to assessed medications that can improve their lives.”
Thursday, 6 May 2021, 1:25 pm
Rare Disorders NZ (RDNZ) supports Patient Voice
Aotearoa’s nationwide ‘Lie Down for Life’ to call for
better access to modern medicines for genetic, undiagnosed
and rare disorders.
“Anyone, anytime, could find
themselves or a loved one having to cope with the symptoms
of a genetic rare disorder,” says RDNZ Chief Executive
Lisa Foster. “It makes no sense to provide access to
medicine based on greatest numbers. All children and adults
deserve access to assessed medications that can improve
their lives.”
“That’s why our genetic,
undiagnosed and rare disorder collective will stand
alongside the families dealing with disease types such as
Johnny Mercer MP gov.uk - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from gov.uk Daily Mail and Mail on Sunday newspapers.