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In today’s world, data is power. Healthcare providers have massive amounts of rich health data at their fingertips. Yet historically, third-party vendors to healthcare providers often have derived financial benefits from secondary use of this data through aggregating and brokering de-identified data to downstream customers.
That is beginning to change as healthcare providers are taking back control of their data assets.
Truveta, Inc., a new startup led by 14 of the largest health systems in the U.S., has formed to pool together their vast and diverse data in order to take back control over how their patients’ de-identified data is shared and used. Truveta’s goal is to leverage patient data to improve patient care, address health inequity, accelerate the development of treatments and reduce the time to make a diagnosis.
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Thursday, March 4, 2021
The Illinois Biometric Information Privacy Act (“BIPA”) continues to attract litigation, and the battle continues as to what allegations of a BIPA violation may proceed in the federal courts. As you will recall, BIPA was enacted in 2008 to protect the privacy of personal biometric data. Section 15(a) of BIPA requires a company to publicly post a general notice about the company’s biometric data retention periods. 740 Ill. Comp. Stat. 14/15(a). Section 15(b) of BIPA requires a company to provide specific notice and obtain consent from the particular person whose biometric information is collected.
Id. at 14/15(b). BIPA also bans the sale or trade of personal biometric information for profit.