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How an ultra-rare disease is bringing this N S family closer together

Posted: Jan 03, 2021 6:00 AM AT | Last Updated: January 3 Bradley and Amanda Bright are siblings with Camurati-Engelmann disease. They, along with their father, are believed to be the only people in Canada with the condition.(Bradley Bright) Three Nova Scotians who have the same extremely rare condition say their shared experience has brought them closer together as a family. Brad, Bradley and Amanda Bright have Camurati-Engelmann disease, a skeletal condition that causes increased bone density, primarily in the legs, arms and skull. It can cause pain, muscle weakness and difficulty walking. The Brights are believed to be the only people in Canada with the disease.

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