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Greg Smiley’s world changed abruptly in 2013. He was racing down a mountain road on an outback cycling trip in South Africa, when he hit an obstruction in the road and fell face-first onto the pavement, still clipped to his bike.
The impact did considerable damage, including a potentially disfiguring injury from the bridge of his nose down to his chin.
That started a multiyear and multifaceted journey of recovery for Smiley, during which the seed for a new nonprofit was planted. This idea ultimately culminated in the Adira Foundation, founded in 2019 and focused on finding commonalities to solve complex issues across five neurodegenerative diseases, including multiple sclerosis.
Negotiating for the fair treatment of study participants and benefit sharing before a study commences does not constitute an unfair inducement. It is an ethical imperative.
SA Covid-19 vaccine trials âhold key lessonsâ for future partnerships
By The Conversation
By Keymanthri Moodley and Theresa Rossouw
Covid-19 vaccine supplies are available in various parts of the world. But itâs clear that distribution is not symmetrical.
High-income countries have access to disproportionate quantities of limited supplies.
Vaccine nationalism, stockpiling and profit-driven strategies of global pharmaceutical manufacturers have shown up global health inequities.
More than 100 million doses of Covid-19 vaccines have been administered globally to date. Only about 200 000 (0.2%) have been in Africa.
South Africa is one of the first countries in sub-Saharan Africa to procure vaccines. The country has some of the highest reported cases of Covid-19 in the region. But, despite hosting a clinical trial of the AstraZeneca vaccine, South Africa was unable to secure a fair pricing agreement.
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Peter Godfrey-Faussett (top right) presenting at HIVR4P 2021.
A full package of effective prevention interventions, up to international standards, must be offered to people taking part in HIV prevention trials, say UNAIDS and WHO in new guidance issued this week. This means that if researchers want to run a study in a country in which PrEP is not routinely available, they must find a way to provide it to study participants. If the study demonstrates that a new product is effective, the researchers have new obligations to provide it to study participants at the end of the trial and help make it available to the wider population.