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COMMENTARY: Everyone wins when patients control their health records

IT’S NOT A debate anymore: Patients have every right to control their health information, and recent developments show how this trend is expanding. From the 21st Century Cures Act to Apple’s recent update that will allow patients to share personal health information directly into their medical records, consumers have the power to do more with their data than ever before. And with that power comes many benefits—for both patients and businesses. Today, patients are no longer handcuffed to referrals. Instead, they have a universe of information available at their fingertips, and they use what they’ve learned to shop around and make the most informed decisions about their health.

Form S-1/A Caribou Biosciences,

Form S-1/A Caribou Biosciences,
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Civil Rights Right to Access Allow Patients More Control Over Health

Thursday, July 22, 2021 Since the Health Insurance Portability and Accountability Act of 1996 (HIPAA) Privacy Rule became effective in 2003, it generally required covered entities to provide patients timely access to their medical records. Of course, state health laws also have provided similar rights to patients regarding their records, some more and some less stringent than HIPAA. However, concerns over the level of patient access to records are driving increased emphasis, heightened enforcement activity, and new laws to ensure individuals have easy access to their health information. This includes the two-year-old Office for Civil Rights Right to Access Enforcement Initiative and the new information blocking rules under the 21st Century Cures Act: Interoperability, Information Blocking, and the ONC Health IT Certification Program.

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