Capital Region parents push for FDA reform of rare disease drug reviews
Federal legislation would require rare disease experts, patients weigh in when drugs come up for review
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U.S. Rep. Paul Tonko, D-NY, holds a virtual discussion on legislation he says would strengthen the FDA review process for approving rare disease treatments.Screenshot
Capital Region parents are helping lead the push for bipartisan federal legislation that advocates say would lead to better, easier and more affordable treatment for rare diseases.
The parents, all of whom have children in the area with rare conditions, spoke out about the legislation Monday during a virtual roundtable event with U.S. Rep. Paul Tonko, who says the Helping Experts Accelerate Rare Treatments (HEART) Act would lead to “some of the greatest progress” the U.S. has taken against rare diseases since the Orphan Drug Act of 1983 incentivized the development of drugs to fight them.
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U.S. Navy to Decommission First Littoral Combat Ships This Year
Independence and USS
Freedom, the Navy’s first two Littoral Combat Ships (LCS), will be decommissioned in July and September of this year, respectively.
Both ships are only halfway through their originally projected service lifespans of 25 years.
The LCS program has been dogged by criticism of its cost and effectiveness since its inception. USNI News on Tuesday quoted Navy officials suggesting the first four LCSs should be regarded as prototypes or “test ships,” so the decommissioning of LCS-1 and LCS-2 is not unusual or an indication that the entire class of ships could be retired.
U S Navy to Decommission First Littoral Combat Ships This Year breitbart.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from breitbart.com Daily Mail and Mail on Sunday newspapers.