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DHSC publishes UK Rare Disease Framework

DHSC publishes ‘UK Rare Disease Framework’ 12th January 2021 The UK’s Department of Health and Social Care (DHSC) has published its ‘UK Rare Disease Framework’, which will aim to continuously improve the lives of people living with rare diseases. Despite rare diseases being individually uncommon, it is currently estimated that there are over 7,000 rare disease, with new conditions being identified as research advances. Currently, 1 in 17 people will be affected by a rare disease at some point during their lifetime. The framework identifies four key priorities for rare diseases care and diagnosis to be addressed over the next five years, which includes:

MIL-OSI United Kingdom: New strategy to accelerate diagnosis and improve treatment of rare diseases

MIL-OSI United Kingdom: New strategy to accelerate diagnosis and improve treatment of rare diseases
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New strategy to accelerate diagnosis and improve treatment of rare diseases

New strategy to accelerate diagnosis and improve treatment of rare diseases The new framework will raise awareness of rare diseases, speed up diagnosis and improve care and treatment. From: 9 January 2021 Rare Disease Framework sets out vision to improve the lives of more than 3.5 million people with rare diseases in the UK The framework will speed up diagnosis, increase awareness and improve treatment and care The new strategy has been designed around the views and experiences of those living with rare diseases Millions of people with rare diseases, like Huntington’s disease or cystic fibrosis, will benefit from a new framework to raise awareness of rare diseases, speed up diagnosis and improve care and treatment.

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