SAN FRANCISCO, Aug. 18, 2021 /PRNewswire/ The global pulmonary arterial hypertension market size is expected to reach USD 7.7 billion by 2028, according to a new report by Grand View Research
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In the United States, if a disease is diagnosed in less than 200,000 people, itâs considered a rare disease. Advocates for those who suffer from rare diseases have designated the last day of February every year as Rare Disease Day. This is an acknowledgement that is designed to raise public awareness about rare diseases in hopes of generating adequate health care, treatment options and opportunities for social support. According to the National Organization of Rare Disorders or NORD, all pediatric cancers and 500 types of other cancers are considered rare diseases. The NORD also exposes the grim reality that more than 90% of rare diseases do not have FDA approved treatment options in place.
Richard Kaufman
For the past year, nearly all of the world’s attention has been on COVID-19, and rightfully so, as a once in a lifetime pandemic has wreaked havoc on the globe.
But on Friday, the Town of Greenwich hoped to shift some of the focus back on some of the lesser known diseases and ailments that families are facing everyday, by declaring Feb. 26 as Rare Disease Awareness Day.
First Selectman Fred Camillo issued a proclamation at Town Hall to John Hopper, President of the Greenwich-based Fibrolamellar Cancer Foundation (FCF), which represents one of the over 7.000 known rare diseases in the world.