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Kyowa Kirin welcomes the decision that NICE will revisit their appraisal of the innovative systemic treatment, POTELIGEO? (mogamulizumab), for adults living with two forms of ultra-rare non-Hodgkin lymphoma

Had to Fight to be Treated: Black Woman Nearly Died of Rare Skin Disorder After Being Sent Home from Two Hospitals Because Doctors Didn t Recognize Her Symptoms

A Black woman from the United Kingdom said she went to three different emergency rooms while suffering from a “horrific” skin disease before receiving treatment because doctors didn’t think her symptoms were severe enough. Kanayo Dike-Oduah, 27, told BBC that it was only when she was seen by a doctor with darker skin that she was finally admitted to the hospital. “I feel failed,” she said. “They literally said, ‘If you hadn’t come today, you would have died,’” Dike-Oduah recalled. Kanayo Dike-Oduah, 27, nearly died of a rare skin disorder. (Photos: BBC screenshot) About a year ago, she first came down with symptoms of a rare skin disorder called Stevens-Johnson syndrome. The disease carries a mortality rate of up to 50 percent in severe cases. It is most often a reaction to medications and starts with flu-like symptoms before progressing to spreading painful rashes and blisters.

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