Melanoma Research Foundation Launches Historic Patient-Reported Ocular Melanoma Registry
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The MRF s CURE Ocular Melanoma (CURE OM) initiative announces the first-of-its-kind patient-reported registry to accelerate the pace of research and treatment development, transforming the scientific understanding of this rare disease. WASHINGTON (PRWEB) May 10, 2021 The Melanoma Research Foundation’s (MRF) CURE OM initiative today announces the launch of the Virtual Information System to Improve Outcomes and Networks (VISION) Registry, a first of its kind patient-reported, patient-driven ocular melanoma (OM) registry. A patient registry is a critical tool to advance medical research, especially for a rare disease where data collection and research collaboration have been historically challenging. In contrast to clinician-driven data registries, the VISION Registry is unique in that it is patient powered and r