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Local organizations launch needed resource for people impacted by rare diseases
The partnership includes Spectrum, MSU and Calvin University.
and last updated 2021-02-20 10:24:57-05
GRAND RAPIDS, Mich. â Spectrum Health, Michigan State University College of Human Medicine, and Calvin University are launching a new resource for people impacted by rare diseases.
âThere are some common things that we know families deal with that we try to target our work towards,â said Dr. Caleb Bupp, Division Chief of Medical Genetics and Genomics for Spectrum Health.
The website includes stories, resources, and research for people impacted by one.
âSocial media and things have made connecting easier than ever before, but a lot of rare disorders donât have something [ i.e. resource groups ] and thatâs why weâve tried to make this as big of a tent as possible,â said Bupp. âGo after the more common things, what things are hard with rare disease; Itâ