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COVID rates plunge in Michigan nursing homes following vaccinations

Local organizations launch needed resource for people impacted by rare diseases

Local organizations launch needed resource for people impacted by rare diseases The partnership includes Spectrum, MSU and Calvin University. and last updated 2021-02-20 10:24:57-05 GRAND RAPIDS, Mich. — Spectrum Health, Michigan State University College of Human Medicine, and Calvin University are launching a new resource for people impacted by rare diseases. “There are some common things that we know families deal with that we try to target our work towards,” said Dr. Caleb Bupp, Division Chief of Medical Genetics and Genomics for Spectrum Health. The website includes stories, resources, and research for people impacted by one. “Social media and things have made connecting easier than ever before, but a lot of rare disorders don’t have something [ i.e. resource groups ] and that’s why we’ve tried to make this as big of a tent as possible,” said Bupp. “Go after the more common things, what things are hard with rare disease; Itâ€

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