EDMONTON A local family is looking to the provincial government to fund a pricey, but life-changing treatment for a rare disease. Reign Johnston was diagnosed a year-and-a-half ago with Spinal Muscular Atrophy (SMA) Type I – a genetic condition affecting his muscle tone as his body does not make the protein to develop muscle. This condition affects his ability to breath, eat, swallow, and move. Funding for the drug to help treat two-year-old Reign’s SMA, called Zolgensma, has been approved in similar cases. The gene replacement therapy would significantly improve his quality of life but has a price tag of $2.8 million.
Every month, the Awards is celebrating a member of the GBEA community who has shown incredible entrepreneurial spirit. And, as a reward, Glen Scotia Single Malt Whisky will be sending bottles of its classic Double Cask and 15 Year Old single malt Scotch whiskies.
March’s winner is
Josh Wintersgill, founder of Able Move!
Diagnosed with Spinal Muscular Atrophy at 18 months old and confined to a wheelchair since the age of 10, Josh created Able Move in 2018 to help disabled people board aeroplanes safely and with dignity. He soon won the Stelios Award for Disabled Entrepreneurs and secured a deal with easyJet, rebranding the product the easyTravelseat.
TOWIE s Kelsey Stratford shares happy update on sister, 8, after Covid battle
EXCLUSIVE: TOWIE star Kelsey Stratford has told that eight-year-old sister Kennedy is really well after she rushed to intensive care in November with coronavirus
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TOWIE star Kelsey Stratford shares emotional update as her sister fights coronavirus
Kennedy spent three weeks in the intensive care unit
Updated
Kennedy was taken into intensive care last year (Image: Instagram/KelseyStratford)
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Reality TV star Kelsey Stratford has shared an emotional update about the health of her younger sister who has been fighting Covid-19.
Kelsey Stratford has revealed her sister Kennedy is doing really well , after she previously feared she could die while battling coronavirus.
Kennedy, eight, who has genetic condition Spinal Muscular Atrophy (SMA), was released from hospital in November after battling the virus as well as sepsis.
Speaking to The Mirror, the TOWIE star, 20, insisted Kennedy is doing much better lately and is really good health-wise.
Siblings: Kelsey Stratford has revealed her sister Kennedy is doing really well , after she previously feared she could die while battling coronavirus
She said: She s doing really well, bless her. Health-wise she s great, but she s getting a bit bored indoors. but she s going for a little picnic today, so she s really excited for that. In herself, she seems happy, and health-wise, really good.