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‘There was no tomorrow’: The rare disease that claimed Marcia’s life We’re sorry, this service is currently unavailable. Please try again later. Dismiss Save Normal text size Advertisement Kris Ferguson and his wife Marcia Ferguson-Roa always promised each other that if they lived to 80, they’d take their yacht out to sea and pull the plug. But Ms Ferguson-Roa, 59, didn’t get to enjoy a final sail. She died at St Vincent’s Hospital in December a week after being diagnosed with a rare autoimmune disease called dermatomyositis. It is a variation of myositis (inflammation of the muscles) that affects the skin.

Christine loweCarola vinuesaAbu jalilMatthew cookKhaidir abu jalilMyositis association australiaHumanity fundAustralian national university centre for personalised immunologyProfessor carola vinuesaAustralian national universityPersonalised immunologyPharmaceutical benefitsகிறிஸ்டின் குறைந்தமேத்யூ சமைக்கவும்மனிதநேயம் நிதிஆஸ்திரேலிய தேசிய பல்கலைக்கழகம்