Brave boy, 4, with cyst the size of grapefruit on face teased with nasty comments
Alex Grabowski defied odds to take his first steps after doctors claimed the weight of the grapefruit-sized cysts on his face would make it too difficult for him to have balance
Alex pictured with his brother, Roman and mum, Emily. (Image: SWNS)
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For an entire year, my eight-year-old daughter and I have lived in one room.
It is the last room at the end of the ward. It consists of two beds, one wardrobe and a tiny bathroom. It has two windows – one that looks out on the ward, and another that looks onto the hospital opposite.
Jessica has a very rare life-threatening condition, ectodermal dysplasia. Her immune system doesn’t work as it should, which means a simple cold, let alone coronavirus, could be fatal.
We’ve been living under effectively strict lockdown conditions for the last two years at Great Ormond Street Hospital. But in February 2020, Covid shrunk our world even further: we became confined to one room where we eat, drink and sleep. Jessica hasn’t been able to leave the room at any point – doctors say they think she is the second longest ever stay at GOSH.
Joe Boote, 34, has completed a 300km hike with 35lb of weight strapped to his back
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Dad-of-two Joe Boote has completed a 300km hike - with a 35lb weight strapped on his back - to raise cash for poorly children.
A Swindon mum, with a vulnerable young son spoke about the pressures on families caring for children with a life-threatening condition during the pandemic. Mehwish Shoaib looked after her nine-year-old Hassan, who has severe epilepsy, as well as her 13-year-old and three-year-old daughters. Hassan cannot be left alone at any point as his seizures could be fatal, but caring for him became more difficult when coronavirus hit the UK. His NHS-funded weekend carers could not visit and the family relied on support from the Rainbow Trust charity as well as occasional phone calls from Hassan s school, medical team and social worker.
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