A form of hemophilia a rare and severe inherited disorder that impairs the bloods ability to clot the slightest injury a grain has an internal bleed or even just a bruise could cause a reparable damage i mean very engine ricker it is easy for me with. Every day richard inject himself with the blood clotting agent factor 8 these days its sterile and safe but in the mid seventies and early eighties a treatment like this infected about 5000 people in the u. K. With either hiv or hepatitis c. Or even both. Richard was a man and he had to undergo a series of treatments. Are very cross. Side effects mood swings and sweating in. Part. To take. Drugs. In the 1970 s. A new drug called factor 8 was released to using human blood it promised a much easier life for him a philly x. They no longer needed to go to hospital and could self administered the treatment by injection at any time or convenient place. But it had one fatal flaw rebelde which patients knew nothing until too late. One. Of your treatment might contain the donation of 4050000 people. A lot of products in the u. K. Came from america and one of the things we now know that the people giving the. People who maybe were in prison. And i encouraged to give that. To provide. This is a result showing that you were 8. Years and you werent. Where you told that you were being not. Because. The drugs dont move and the brutes and ankle supports have saved me a few times because sometimes you walk and you roll your own call and if i didnt have these on i would have a very bad bleed. From one girls. Like other he was fairly x. Martin has problems with joints mainly his knees and elbows caused by internal bleeding. And was diagnosed within a full year about the age of 6 months old. Growing gawp with him earlier back then for a parent it was a nightmare children there always were in falling over buying in themselves and i would have all kinds of internal bleeds and damage to my joints. Burden was under constant medical care 1st at Birmingham Childrens hospital and of year age of 17 he was sent to an adult facility. I remember being in the White American and my name is called out now the doctor doesnt even introduce himself his 1st words were hello i see youre a child people i didnt understand the significance of what he was saying because i was a healthy teenager a my words to him were all well thats a lot even goes on to say that your life for the next 2 years and then i said what do you mean by that. And he goes you got 2 years to live. Thats when it hit me. So we rode back to birmingham and got a letter that says on it that i was tested in 1900. Without my knowledge i was found 3 h. On the positive but it also says that i found an old sample of my blood from atlanta 93. 00 and i was positive then. But i could have been working oh why i could have been sleeping with somebody and it would have more to for me if i have infected a girl what gives them doctors the wrong to play god brought up a risk or the peoples laws why didnt they tell me. In 1981 i knew had previously unheard of disease was discovered in the United States acquired immune Deficiency Syndrome aids. In january 982 with the 1st hemophiliacs contracted aids in the us no in more cases have been recorded by the end of the year 8 of which were terminal. Despite this Great Britain continue to import american factories. Are you proud of your all the new jump. Up on what if you call him a for. Ever jerry jerry j. J. Sure. My dad lived with hemophilia. Really did all won the game affiliates again his way the time it was kind of an odd thing the song people. Say he was there carpenter using these huge saws and swinging. Wood around the shop the things. You know that sick let me go i was. Crazy for. A mary thanks for the videos because its the evidence why memory doesnt have. Its it was a father to me and he raised me and was doing everything a father should. Say he was there i was. In towards the late seventys he sees concentrates because that was for those who just saw him and everyone else see use. Main 1803. 00 so the 1st reported case of the british hemophiliac contracting the disease. Appeared in the press claiming that factor 8 was a safe. In november of 84 he raised concerns about the products with he stopped and they told him this is just sensationalism its fine you know dont worry they convinced him to carry on using fats concentrate and then it was only shortly after that the his 1st choice b. Tests came back as opposed to. Things just very difficult a strain on the relationship with my mom you know theyd only got married and nothing their life went from being one of planning for the future to planning for the end. To in your statements about one of the worst things being that feeling of sticking that. Year with relation to. Her chair in the early turks who christer people dont get very for you were. Only for. Doubts that he was positive felt such fear never felt little its not the fear of what he might suffer its its social its everything its children its housing its your careers everything is gone it was something to be ashamed of even though we did nothing wrong he did nothing wrong i had been a prominent lawyer locally and then one knots i walked into a pub to play mama and the landlord just pointed out me and said you get out the pool team ive been playing with but i also dont there not one of them tried to defend me of how sick. And i felt dead. This was a classic case of. Well informed. It doesnt take away the fact that it made me feel a lot rubbish. My dad lost his job among got such from her job they received hate mail phone calls making fun of. The stigma was incredible its this whole thing though if you had a zoom you a gay or you druggies or or some kind of what they sold to be an desirable person. By 9190 might say he had become verio. He had progressed to a its only opportunistic infections using off way slowly going through a horrible death. And. By the end of my 3. News news that. Jason evans founded the independent Campaign Group factor 8 its members of the immediate relatives of him affiliates who died because of contaminated blood products his Organization Provides them with legal help. I really only had one goal when i got involved in campaigning on this subject i wanted it to tell on the official record what happened could and should have been avoided i think after that point maybe theres room for that as support for people counseling and compensation and all these other things but i think from apes. So they want on the record that there is life. And then ill be satisfied. By the pandemic no certainly no borders and a slide into nationalities. Has emerged we dont come to turkey we dont look like seeing the whole world needs to be. Judged as commentary prices. We can do better we should be better. Everyone is contributing each your own way but we also know that this crisis will not go on forever the challenges create the response has been so many good people are helping us. It makes us feel very proud that we are in it together. Time after time corporations repeat the same mantra sustainability very important. Transitions to sustainable prize board sustainability. A more equitable and sustainable world. They claim their production is completely harmless. Companies want us to feel good about buying their products while the damage is being done far away and this is this going to. Mean listen we didnt. Understand so when. We can see which it has most clearly documented dates them 10th of september 1976 so very soon after you would be still saying it should go and we can see the words hepatitis rates. The existence of a risk of habits like to something you or your parents were aware of. The show. Cash cow and that is dari alfonzo mongery has died. Hes died and. Hes died on the last one of the page pate changed dard or. At 11 years of age richard went to Trial Lawyers College a special boarding school for children with disabilities. Theres an n. H. S. Health center on the campus students could receive the medical care they needed and attend classes all in the same place. Its also the site of the greatest concentration of contaminated blood cases that the u. K. Has ever seen. d d what it. Is that you receive significant quantities of fats are a prophylactic they. Are crazy about. Arent 2 real target joints and that was my left mate in the right. For our Current System why they would give me consecutive doses day after day. Great britain will be selfsufficient in blood products and will guarantee their purity. It was the governments promise in the 1970s. When government came in that pledge in the name went away and they found a way around the. Importing this particular product. All these issues were very often at meetings of 1015 people but they were all held in secret no one was allowed to publish the the minutes of the meetings. The main beneficiaries of that secrecy were pharmaceutical companies. These companies had a huge financial motivation to sow these problems today. The fact concentrate market is a 1000000000 dollar industry in order for me to say our product is safe for the next companies they needed a trial date that showed weve used this product and its not infectious and in this country at least the doctor is. Often as consultants to the pharmaceutical home as there are numerous documents showing that doctors in oxford doctors in cardiff work keen to test facts or a concentrates infectivity on their patients to all hemophilia since directors. Initial production bunches may have been tested for infectivity by injecting them into chimpanzees it is unlikely that the manufacturers will be able to guarantee this form of Quality Control for all future batches it is therefore very important to find out why studies in human beings to what extent the infectivity of the various concentrates has been reduced. The reason they used humans instead of chimpanzees was one because chimpanzees were expensive and essentially patients were free when they dont know their partner experiment we tried to speak to the pharmaceutical companies that produced factor 8 at the time over the last 50 years they have changed names and ownership several times and none wanted to talk about the contaminated blood issue now. What we know now is that the trolls are also conducting tests regularly and keeping records of liver function tests which made you think ok so what are we actually looking for figuring in a safe product or if you want to monitoring how you live. Or if you take a sales are you cd for care i would be looking at these things. Out of the 80. 90 of affiliates who went to train those college 72 died. And people are still dying. Or from liver related problems to have a charge say. I actually feel guilty im still here i asked myself the question why am i still alive. You know 70 percent of the hang for that boy use the rats college. Ive had and i dont care and im always question yourself why me i why my soon i live by being allowed to live when so many have and. The official claim was that the new medicines were safe the most emphatic statement to that effect was from Kenneth ClarkHealth Secretary under margaret thatchers government. I think someone that really has a lot to answer for as a minister is. The well known Kenneth Clarke actually stood up for an argument and said there is no conclusive proof. Is transmitted through blood products he really needs to answer for putting out that type of misinformation and this was the reply we received from kenneth clocks office and chris the clock has chosen to decline this request and from the u. K. Department of health the infected blood inquiry is a cabinet of its leaders and therefore they will be the ones best placed to answer your questions beyond that initial acknowledgement the Cabinet Office has not responded to our request. And all we could find on the official u. K. National Health Service website was a report mentioning that victims are entitled to apply for compensation. 2019 and for the 1st time the u. K. Government agreed to hear what the victims had to say a Public Inquiry was opened in london and jason evans Group Factories is taking part in it is finally happening its been a long road and this is a this train journey is one that i say him countless times over the last 34 years. Even before jason was born his father was aware of the deadly disease. In spite of the risk of passing on the contamination his baby was born in. And think about how would i have dealt with what my dad went. Next year ill be the same age my dad was when he died. I think about if i was to die i did next year at that age that would have been really a very short life. That weighs heavily on my mind. In 1918 tina and. Yes. Accident shall we say. The wife knew pretty soon after and she went to see her doctor. Where we were advised really in no uncertain terms. To look at. It was all in those few months all mixed up together and at the time we were still reeling from the shock and the implications of dealing with the diagnosis i could have been positive in which case what were we you know we were bringing look at child at that time to be an orphan if youd come into the world we didnt know how long we have or the child could have been positive as well as me in which case was it morally right to give birth to a child that i be you know suffered terribly i couldnt walk away from a man who are supposed to love just when he needed me most and once we found out that i was ok afterwards. He. Realized that if i was going to be a mother it wouldnt be with richard and i just say with richard he said youre a perfect stream really loving and supportive wife yes shes shifting to me. As it. Assists a Great Sadness to the pace the speed that you have to have children. To be able to make that. Anything you. Have to say at the time it seemed easy i didnt feel as if we had any choice sally lazy a thing. But. Martin bed was also thinking of starting a family his girlfriend was a nurse at the hospital where he received his treatment. Ive got the dial m. Earth hemophilia pass and not on the don lemon or of a child of a not just infecting her but possibly possibly on to children as well so took the decision after about a year to split tilt so that hopefully she could go off and have a family of our own and thankfully she did and were still friends on facebook so you know and she seems happy which is good. This is a very very apt rebate and not such a. Very loyal dogs rottweilers are very protective as wild. Animals are one of the greatest comfort she can ever offer. Because she can have the lousiest day in the world when you walk in that house and the dogs are pleased to see you. Dogs know when youre in i mean i know when youre in trouble and. Its soothing. The. 2 attempts were made over 40 years to investigate the causes of this medical disaster in the u. K. But so far no one has been held accountable. The current inquiry is goal is to gather evidence the final decision about how to proceed after that will wrist with the government. I have very doubt that what happened was criminal i think the real question is to what degree was it credible i mean nothing bad better were talking about some form of criminal negligence and perhaps corporate manslaughter perhaps as high as murder and i think the inquiry can help direct in some way where where those lines made. Their criminal prosecutions have been brought in other countries and they have been successful particularly in france whether they will be brought in this country i suspect not the reason they wont bring them though the Crown Prosecution Service wont be directed to bring those prosecutions its because its widely accepted that they would be successful and the only way they can avoid a successful prosecution is to avoid bringing it to. The Public Inquiry is expected to continue for at least 2 to 3 years too late for the victims who have already died and to long for those still fighting for their lives every day morning. First witnesses. He was so bright. I was told about a year to live it was a hard time its so frightfully experience it wasnt a life. Really treasure exams anymore because we did a few years so we will actually. I do feel calmer it. Came out the. Tone swamps it down the house hard enough is no way should have to do that we just wanted to be with them. And i believe now is the time to just to say. No we are small is a recognition of our lives a meaningful recompense for the learners weve had so cruelly stolen from us. Is your media a reflection of reality. In a world transformed. What will make you feel safe. Isolation for community. Are you going the right way or are you being led. Direct. What is truth what is faith. In a world corrupted you need to descend. To join us in the depths. Or inmate in the shallowness. Join me every 1st week on the alex simon short and ill be speaking to guest of the world of politics or business im sure ill see you there. Russia is ready to provide the u. N. With top notch assistance free of charge for. United nations stuff to try a brand new russian covert vaccine for 3 of the things that the countrys already received requests from u. N. Colleagues amid a 3rd stage of vaccine trials here in russia correspondent becomes one of the 1st in the country together to show. This morning in agate a call from the creamy stain i am an ideal candidate here look this is your vaccine theres not much in there but looks like a couple of drops ok im ready. Now the news about your mccrum demands of russia respect red long