Transcripts For KNTV Press Here 20141102 : vimarsana.com

Where did i come from is more than just an existential question. As adoptees, many do not know where they come from. Theyre just one group of people using dna kits from 23 and me to find out. 99 and a cheek swab later, the Company Tells you literally who you are genetically. Your ethnic background, some cases can identify your relatives. Until recently, they could also tell you about your health, including p including predispositions for various diseases. The fda recently put a stop to that. Anne wojcicki is the founder, a graduate of yale, a very accomplished individual from a very accomplished family. Her mother is a legendary teacher from palo alto. Her other sister runs youtube. And shes raising two children with one of the founders of google. Joined by Quentin Hardy of the New York Times and sara lacy of pando daily. I would love if your kids are just artists who drop out. Lets start with that. What about your kids . Thats a tremendous amount of pressure on kids when they come from a family like that. Yeah, you know, i dont really i mean, we kind of encourage our kids to follow to have passions and to follow their passions. I wasnt raised with any kind of pressure. I grew up on stanford campus, surrounded by all these famous people. I didnt know they were famous until i got to college. If its not weird, its just what you know. Thats okay. Everyone that was surrounding me were people that were passionate about what they did. You thought that was normal. More to the point, have you genetically tested your kids . Of course i have. What did you find . I actually tested my daughter when i got the amnio back. I sent the cells off for testing. It was important for me to get this information right away because i do believe that the more information you have early, the more then i could engage with a pediatrician and think about, are they higher risk for anything and are there any types of things i want to do . Its also it was really cool. It was cool to actually look at the grandparents, me and sergei, and the children and see, you know, which child got more dna from which grandparent. We could kind of assign percentages to each grandparent and be like, well, you dont get as much time with this child because you contributed that dna. It turns into a kind of biological scrapbook. And its not subjective. My son looks 100 like me. My husband is like, maybe 10 . No, no, no. In the leadin, i mentioned the fda had sent you a letter saying you have to stop sending Health Information specifically. Whats the objection . The person receiving it and getting it in the mail wouldnt be able to understand what it meant . So the fda came to us and said we are a medical device and we need to submit as a medical device. Theres concerns, you know, we are the only directtoconsumer company. I think part of what weve been doing is weve been doing something very new. Were direct to consumer, meaning you the individual have the ability to order 23 and me online. We send you the kit. It doesnt require a physician. Secondly, it was really inexpensive. Suddenly you had this potential of huge numbers of people getting their Genetic Information for 99. As a government regulator, i have no problem with that, but i have a problem with what . I think there was concerns about, you know, they wanted it to be a medical device and to get that information through the approval process showing the accuracy that this had the right accuracy and had the correct conte content. I thought this would have been a risk you thought about when you started the company. It was somewhat unchartered territory. Are you surprised they let you do this . We first went to the fda right when we launched. There was this thought this wasnt going to be a regulated product. As we evolved and had more information, we had that variant, those three variants. So more and more, as it becomes of medical relevance, then it became so you became a more important tool. That ended up putting you in danger. I have a lot of respect for the fda point of view here. I have a neighbor whos a cancer doctor. People always say when they get the word, what are my odds . She says, i cant tell you your odds. I can tell you the odds. Most people arent really equipped to make that distinction. Youll tell them stuff about a predisposition for leukemia or cancer and its freakout time. They dont know what to do with it, or they may do Dangerous Things to themselves with the information. Knowing how to manage the information is not well baked into the society. Thats where weve done an extensive amount of testing. We have almost 800,000 people who have done this. We have tested extensively. What weve found is the way we were presenting information, people could make sense of it. When we think about and let me go back on the fda stuff. We were under the diagnostics, the laboratorydeveloped tests. We follow the Standard Practice for all diagnostic tests out there. The difference there is because of the direct to consumer and other types of things, the fda classified us more as a medical device than as a Standard Laboratory diagnostic test. How do you solve this . Do you send the letters directly to someones doctor . Were working with the fda to become a medical device. So its a transition. Theres a lot of transition happening in the whole diagnostic space as its transitioning over from being regulated by medicare to the fda. Is this a transition where the fate of the company hangs in the balance . Is this a transition of we may not grow as fast, were not quite as useful, the value proposition. I think its critical that the Company Pioneers us. I would actually say the entire genetics industry has this need that we need to define the regulatory path going forward. Your whole genome sequence is going to be available to you know, cheap. Its going to be 100 at some point. When all this information is so easily accessible, what is the right way to regulate it . Youre on the forefront of a very interesting ethical area, where people are getting more information and have more power, and there is a whole series of institutions that used to manage these things for them. Generally in a positive way. But now theres all this autonomy, and should people claim this and how . I would argue theres a massive shift going from when your fashion used to control everything to where the consumer controls things. If you look back, there was a study done in the late 1960s where 90 of physicians would say, if you were a patient diagnosed with cancer, 90 of physicians would not tell you that diagnosis. Even when pregnancy tests were allowed on the market, should consumers get that information from their drugstore, or do they need to go to a physician . So society, especially the medical world, is transitioning to this idea that the consumer should be empowered. The more i empower you, there are finances and other things, the more you step up and take responsibility. Sounds good on paper, but how much truth is there in your tool . Theres a certain level of truth that there are protein reactions that arent measured here. Theres much more granularity going on. This was initially marked as this will tell you your genetic fate. Do you feel thats still true . I dont think we market that way. This is your Genetic Information. Were going to keep you current with the latest in the genetic discovery world. If i tell you you have high cholesterol, it doesnt mean youre going to die of a heart attack. It means you have a risk factor for heart disease. Genetic information is the same. If i tell you youre at a genetically higher risk for going blind, it doesnt mean youre going to. But you have a risk factor. If i can tell you you have a risk factor and you can go to the doctor and be more proactive and even just being aware of it. Theres a nature paper that are came out of harvard that talks specifically about how almost 50 of 23 and me customers are taking their data and going to the doctor, and they want to make a change. So i think what were doing is were generating an aha moment where people want to change their behaviors. Isnt it somewhat selfselecting . The kinds of people who are going to do 23 and me are the people who want to feel like they have some agency or ownership over their fate. I havent done it because, like, i kind of feel like when i was pregnant and getting all these odds of everything, it was like, let me just have my baby. Let me just be healthy and have my baby. I dont need to know. Is this really a product for everyone . Am i a dinosaur, the same way i still read physical magazines . I think that theres definitely i think society has this image in our head from all the movies and whatnot about what Genetic Information is. Oh, its scary and about death and dying. Part of the reason why 23 and me has a fund logo and we do the ancestry and we do things like your knee ander that will score is to get people comfortable with genetics. Its about you. It you ask your parents, ask your mom and your dad, say, what kind of conditions do they have, what diseases do they have. Its similar. Genetics is a proxy for actually your familys health. We should footnote, neanderthal score is what percent of you has neanderthal dna. Whats yours . Im in the middle range. But i know people extraordinarily high. Can you tell . Name names. You know a lot of powerful people. Whos the most neanderthal . Secrets stay confident with me. Which is good, because privacy has been another concern. I was just about to break in and make a mention to my producer barb that i need to know how much more time we have with anne. Its more of a technical issue where i get a time signal, and im not getting one. Well continue. We have maybe a minute left with anne. Let me ask you about there are some risks even with findings out who your family members are. You may find out family members you didnt know you have. Even if we dont do, oh, my gosh, i wish i didnt know i was going to have this risk for blindness, oh, my gosh, i wish i didnt know that i was related to somebody. That could happen too. Sure. Your Genetic Information is all about the choice. 23 and mes responsibility is making sure you understand the risk of actually knowing about your Health Information. Like if youre high risk for breast cancer. Do you want that information . Also about the fact you might find out that you have this whole conception about your past, and it doesnt match with the dna. You might have found out that you thought you were, you know, irish and german and youre not. Or that your father is not your father. So theres all those. Its important for 23 and me were an enabler of information, but we make sure its critical to us we have informed customers, that people are buying this information, knowing that these are the types of things they may or may not want. This is the book of life. You can open it or not. Anne wojcicki, thank you ever so much. Thank you. Great to be here. Well, the great cory docket row up next when press here returns. Welcome back to press here. My next guess has a contrarian view on the internet. Cory doctorow says information doesnt want to be free. Cory is the author of lots of great books, both fiction and nonfiction. A regular contributor to wired and my favorite magazine, make magazine. Hes also the coeditor of the website boing boing. My second favorite website, because sarah is sitting to my right. Im closer and in striking distance. Exactly. So this idea that information doesnt want to be free, that the information youre talking about is music and movies and intellectual property. Well, you know, i have spent a good part of the last 15 years fighting about what rules we should have for the internet. A lot of those rules have come to us from the rules about movies and books and so on. At every turn, people tell me this is about whether information wants to be free. I never got out of bed because i wanted to make sure information could have its destiny fulfilled. The only reason i thought about this stuff was so people could be free. In the name of stopping people from watching movies the wrong way, weve surveilled the entire internet. In the name of stopping people from reading books the wrong way, weve made it possible to censor everything. You have cable and youre a allowed to watch a show and you watch it off the pirate, youre watching it the wrong way. We dont discriminate, really. We have the entire gamut of different ways that people watch z stuff the wrong way. The issue is the information doesnt want anything. Theres people on either sides of the information. They want directly opposite things. Who cares what information wants . 17yearold boys want to drink a lot of beer and drive fast. Who says thats a great idea . And whatever abstractions want is not relevant to human beings. Its not our job to fulfill their destiny. The other crisis is in the name of protecting the rights of creators, and thats my job, weve erected these rules that have added all this censorship and failed to protect us. Its not like copying is going to get any harder. Whats happened is that because now whenever you sell a book thats locked to amazons kindle theres a record of that. Amazon also gets to control the destiny of that reader from then on. Only amazon with unlock the book and move it. Its about authors and readers, or it should be. It shouldnt be about amazon and what it gets to do. Sure. In my view, the first cut of the money should go to the creator, then to their investors, the publishers and studios, and last to the company that runs the script for you to buy. As we develop these habits early on, which we still are with the internet, as the internet stops becoming a place we go to and just blows out across the world and attaches itself to our physical reality, what sort of habits and disciplines are we creating for life and work 20 years from now by doing this . Sure. I mean, some of the worst elements of the con tent Business Model have metastasized everywhere else. It used to be to watch a movie, you would have to click through 17,000 words of abusive legalese. Now to change your thermostat you have to and your car. And nobody reads it. It says, we own every behavior. By agreeing to be our customer, youre agreeing for us to come over to your house and punch your grandmother. As part of your contention, we felt like in the first 10, 15 years of the internet, that the internet was dislodging and disintermediates middlemen and gate keepers. Has the internet replaced those with more powerful gate keepers . As we raise the liability for those new disruptive intermediaries, weve made them responsible for taking stuff down without a court process, and weve made it harder to start a new one because if you want to start youtube, youve got to start with 300 million content detection system to prevent infringement. Youve reduced the number of people out there competing for creators business. When i go in to negotiate a contract, my publisher is trying to get me to figure out how to stay in the room instead of going to another major publisher in new york. They also have to offer me a better deal. Now, it never was free. It was just an exchange where id get to read this for free and youd get to observe my behavior. I was valuing my behavior at zero, basically. Yeah. Thats kind of troubling, but has this train left the station, is what im saying . Do people care . I feel like theres always these pundits who care so much about privacy, but theres not a lot of evidence that the average consumer does. I think the evidence is getting better. Three months after snowden came out of the cold, pew did a poll where 80 of americans had taken affirmative steps to protect their privacy. Why is there not something for my iphone . I realize apple says theyre going to encrypt. Why is there nothing that apple or an app maker is making . Specifically in the case of apple, its against the law for you to buy software from any store except apple because they have this digital lock. Only apple gets to decide what stuff you can have. If it messes with their Business Model, you cant have it. There are a few for android. Theyre a bit nerdy. Theres no mainstream sort of thing. Theres not the demand. Why bother doing it . If mainstream customers were demanding it, just saying we took some steps, theyre not stopping using stuff. Ive got to interrupt. If somebody wanted to read cory doctorow, and i highly recommend they do, which book should they start with . Well, if youre looking for a novel, my bestknown novel is little brother. Its a young adult book about kids who fight the department of Homeland Security and bring the bill of rights back to america. Thats what i would have answered too. Sorry we dont have more time. Thank you for being with us. Up next s the internet creating a sense of entitlement . We want to know, and we want to know right darn now. At least when press here continues. Welcome back to press here. The other day i pointed out on twitter to the san jose airport and tsa that the last two times id been through the airport, the precheck line at security was unstaffed and closed, meaning i had to stand in line, which in retrospect makes me a pompous you know what. Heres the thing. That work. You get an answer. The whole mobile internet gives me instant satisfaction. You want a car, you click the uber button, right . David Michelle Davies researched that trend. He says todays consumer expects everything to be like the internet, available in a moments notice wherever they are and totally customized to their taste. David is the president of the webbie awards and runs are new yorks internet week as well. Youre saying its not entirely a negative thing, that this instant ondemand sort of thing trains us, but it can train us for good. Were all millennials is what youre saying. I hope so. We do a lot of research around trends and stuff at the webbies. We all had a similar experience. Basically, we were coming to grips with the fact that we really loved all these services, but sometimes they made us feel a little bit like a jerk. We just felt like they were personally making us kind of entitled. So we wanted to dig into that. So we did some research. We worked with harrison interactive, a big Polling Company who does work for the Obama Campaign and stuff like that. We sur vaveyed americans. In a world where you can push a button and listen to almost any song ever record, have a car take you almost anywhere you want to go, and now actually get a medical opinion in the next 12 minutes. In that kind of a world, what is that doing to Consumers Expectations of life . We used to be a generation that paced in front of a microwave wondering when the burrito was going to be ready. Now thats like a quaint, nostalgic, simpler time. What did you find . We found basically people expect the whole world to be like the internet. Heck yes. Yes, we do. Is that good or bad . Are you suggesting were needy . Is it good . Is it bad . Its good in some cases, bad in others. Its narcissistic. Im definitely narcissistic. Dont you think it bifurcates . In terms of an analogy, when cds got completely eradicated, there was this move to digital music. There was also this resurgence of vinyl. Theres this thing that was no nostalgic. Yeah, 2 of the total sales. It was still relative speaking a growth industry. Youre a very positive person. Im just saying, i think there is you know ive been at tech crunch, where we sort of master doing 80 posts a day. My current publication, we do long term and investigative. Lets get this guy speak. I dont think its the whole world. Heres some stats we found. 70 of people thought that services, all services, should learn things about them and make decisions for them. This makes sense in a world where your pandora is choosing all your music. This is not just on online services. These are innin everything. They want a decisionfree lifestyle. Theyre getting comfortable outsourcing their Decision Making to the cloud or a computer. And its not unreasonable to expect a hotel hey, ive been here five times in the past. This is what i prefer. I dont like to be higher than the third floor or whatever. That would be a great service. No one expects French Laundry to be a mcdonalds. Theres always going to be a certain quality of service thats luxurious. But this is an increase in the quality of service. I guess i think more like immediacy is what youre talking about. A slogan like, have it your way. Weve always been needy and narcissistic. This has leveraged it and made it far more so. So were more insufferable than ever. Yet, we dont eat burger king every meal. Let me stop these two and ask you, of all the webbie awards youve handed out, whats your favorite winner . Thats unanswerable. Like your favorite child. Last night i was at this event for the w3c, which is the standards body for the web. We honored two people there. For me, just personal heroes, the opportunity to honor them has always been a big thing for us. Gosh, its been a great this is our 19th year. Isnt it phenomenal . Some of those early winners were excite and things that dont even exist anymore. Oh, i mean, yeah, its like the California Voter Foundation and sonic net and napster. Those are back then. Today its incredible. If you were going to give advice to kids to be the next award winner, what do you think is the big thing ahead . Oh, stay open to whats out there. Ill tell you, theres just so much Incredible Technology out there. Really digging in and learning about it and finding out about it. What were doing today is not going to be what kids are doing in ten years. Could it be pando daily . Im a big fan. David, thank you for being with us. Well be back in just a minute. If youd like to nominate your own favorite website for the webbie awards, go to webbieawards. Com. As for corys book, it comes out in november. Thats our show for this week. My thanks to my guests. Im scott mcgrew. Thank you for making us part of your sunday morning. Hello, welcome to comunidad del valle. Today, a local latina artist is on our show. Plus, a way to help local veterans. This is your comunidad del valle. Nbc bay area presents comunidad del valle with dameon trujillo. We begin today with a local organization that is doing a great job at helping our students. Its called breakthrough Silicon Valley. With me here on comunidad del valle are Melissa Johns and jessica wenzel. Both members of this great organization. Thank you so much for being here today. Thank you for having us. We have some pictures from your website, but tell us about your organization. So breakthrough Silicon Valley has a dual mission. The first part is to launch motivated yet underserved youth from our community