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February 29 is Rare Disease Day - Spotlight on Batten Disease

This is my friend Clifford. When he was diagnosed with Batten Disease 20 years ago, doctors told his parents to take him home and enjoy the time he has left.

United-states , Chicago , Illinois , New-york , University-of-rochester , America , George-mcintyre , White-sox , Sabastians-kresge , Research-association , Batten-disease , Disease-day

February 29 is Rare Disease Day - Spotlight on Batten Disease

This is my friend Clifford. When he was diagnosed with Batten Disease 20 years ago, doctors told his parents to take him home and enjoy the time he has left.

Chicago , Illinois , United-states , New-york , University-of-rochester , America , White-sox , Sabastians-kresge , George-mcintyre , Research-association , Batten-disease , Disease-day

February 29 is Rare Disease Day - Spotlight on Batten Disease

This is my friend Clifford. When he was diagnosed with Batten Disease 20 years ago, doctors told his parents to take him home and enjoy the time he has left.

University-of-rochester , New-york , United-states , Chicago , Illinois , America , George-mcintyre , White-sox , Sabastians-kresge , Research-association , Batten-disease , Disease-day

February 29 is Rare Disease Day - Spotlight on Batten Disease

This is my friend Clifford. When he was diagnosed with Batten Disease 20 years ago, doctors told his parents to take him home and enjoy the time he has left.

New-york , United-states , Illinois , University-of-rochester , Chicago , America , Sabastians-kresge , White-sox , George-mcintyre , Research-association , Batten-disease , Disease-day

February 29 is Rare Disease Day - Spotlight on Batten Disease

This is my friend Clifford. When he was diagnosed with Batten Disease 20 years ago, doctors told his parents to take him home and enjoy the time he has left.

United-states , University-of-rochester , New-york , Illinois , Chicago , America , White-sox , George-mcintyre , Sabastians-kresge , Research-association , Batten-disease , Disease-day

Possible neuromarker for 'juvenile-onset' Batten disease

Possible neuromarker for 'juvenile-onset' Batten disease
sciencedaily.com - get the latest breaking news, showbiz & celebrity photos, sport news & rumours, viral videos and top stories from sciencedaily.com Daily Mail and Mail on Sunday newspapers.

John-foxe , University-of-rochester-medical-center , Developmental-research-center , University-of-rochester , University-of-rochester-batten-center , Developmental-disabilities-research-center , Del-monte-institute-for-neuroscience , Research-association , Del-monte-institute , Rochester-intellectual , Neurodevelopmental-disorders , Rochester-medical-center

Family dealing with childhood dementia caused by Batten Disease wants better respite services

The McWaters have two daughters with childhood dementia as a result of Batten Disease. They say they are luckier than some as they get to see their children grow up, but they want to see a better understanding of the disease and respite options.

Adelaide , South-australia , Australia , Melbourne , Victoria , Brisbane , Queensland , Goolwa , Sydney , New-south-wales , Victor-harbor-high-school , Hindmarsh-island

Suburban dance troupe helping family whose daughters have Batten Disease

Abigail and Annabelle Beedle have been diagnosed with CLN2, a rare genetic nervous system disorder, also referred to as "Batten Disease." Their story is being told by the Glenview-based Trifecta Dance Collective.

Glenview , Illinois , United-states , Kankakee-river-state-park , Amy-fenton-parker , Krissie-odegard-geye , Annabelle-beedle , Ava-wichser-foerster , Adam-beedle , Amanda-beedle , Research-association , Glenview-based-trifecta-dance