Page 2 - Cure Eb News Today : Breaking News, Live Updates & Top Stories | Vimarsana

And people like isla who have permanent pain, to give mps an insight into their lives. i wanted to come along to give my support. i think, actually, what is a cross—party issue of wanting to make sure that families who are affected by rare diseases like eb get the support they need, but, also, that those conditions are getting a fair share of the budget, too. with high—profile events such as the swim, the money raised will change and, one day, hopefully, save lives. but for charities such as debra and cure eb, that increased awareness is vital because it lets them know that they're not fig...

What is a cross—party issue of wanting to make sure that families who are affected by rare diseases like eb get the support they need, but, also, that those conditions are getting a fair share of the budget, too. with high—profile events such as the swim, the money raised will change and, one day, hopefully, save lives. but for charities such as debra and cure eb, that increased awareness is vital because it lets them know that they're not fighting this horrific disease alone. john maguire, bbc news, westminster. an incredible achievement. still going in a different way. i said he could ha...