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There are some aspects to it that are really quite unpleasant. it is something we are trying to address with little bleeders to navigate kids through school and in conjunction with the haemo heroes app, to navigate young haemophiliacs and their families and their friends as well because it's a tough condition to explain. it is not visual. and i think that doesn't help either. he used to bruise very easily, large bruisesjust from holding him up around his middle. pretty much had to find out what haemophilia ? having a haemophiliac really meant. we were educated and we also had to know what his ...

Large bruisesjust from holding him up around his middle. pretty much had to find out what haemophilia ? having a haemophiliac really meant. we were educated and we also had to know what his limitations were, the dos and don'ts. there were quite a lot of don'ts. we adjusted as best as we could. every time even now we get a phone call and if he's on tour you get a phone call at 1am or 2am, we are worried because it means he's got a problem ? he has crashed or pulled out or something. every time he races it is nerve wracking. i have to take my intravenous injection medication every day during rac...

Pretty much had to find out what haemophilia ? having a haemophiliac really meant. we were educated and we also had to know what his limitations were, the dos and don'ts. there were quite a lot of don'ts. we adjusted as best as we could. every time even now we get a phone call and if he's on tour you get- a phone call at 1am or 2am, - we are worried because it means he's got a problem ? he has crashed or pulled out or something. - every time he racesl it is nerve—wracking. i have to take my medication every second day, which is an intravenous injection. i have to take it every day during rac...

Something we are trying to address with little breeders to navigate kids through school and in conjunction with the app, to navigate young haemophiliacs and theirfamilies and their navigate young haemophiliacs and their families and their friends as well because it's a tough condition to explain. it is not visual. that doesn't help either. he to explain. it is not visual. that doesn't help either.— doesn't help either. he used to bruise very _ doesn't help either. he used to bruise very easily, _ doesn't help either. he used to bruise very easily, large - doesn't help either. he used to | br...

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