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It's been go, go, go, go, go. i'm absolutely shattered. at 3:00, we had to do more chest physio. 5:00, we had to do more chest physio. 8:00, started put his neb on and then had to, um... sorry, i'm knackered. declan's care is paid for by the nhs under a scheme known as continuing health care. it funds him for support at nearly £19 an hour, but his mum says it can cost up to £80 an hour for the skilled nursing care he increasingly needs. and with a fixed budget, it means they get fewer hours of help. at times, alex has gone 60 hours without sleep. i've now got to do the rest of the night, get...

For us since last october. i�*ve been looking after dec all day. because he�*s still getting over pneumonia, it�*s been go, go, go, go, go. i�*m absolutely shattered. declan gets nhs continuing health care funding. it pays nearly £19 an hour for his support, but his mum says it can cost up to £80 an hour for the nursing care he increasingly needs. it means they can afford less help and at times alex has gone 60 hours without sleep. i�*ve now got to do the rest of the night, get declan up in the morning. then i�*m going to have to look after declan all day tomorrow. you have to do...