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Biogen stock up as sales of Leqembi beat expectations

Biogen's Leqembi, the first drug to slow the progression of Alzheimer's, launched last year

Cambridge , Cambridgeshire , United-kingdom , Massachusetts , United-states , Christopher-viehbacher , Drug-administration , Brian-snyder , Japan-based-eisai , Biogen , Hristopher-viehbacher , Usiness

I'm in a wheelchair, and my wife is able-bodied. We have a satisfying sex life, and our relationship is equal.

An interabled couple known as Squirmy and Grubs on YouTube has a normal sex life and balanced marriage. Caregiving makes their relationship closer.

Pennsylvania , United-states , Minnesota , Hannah-burcaw , Youtube , Pinal-muscular-atrophy , Elationship , Hane-and-hannah , Alanced-relationship ,

GoFundMe has become a health care utility

GoFundMe started as a crowdfunding site for underwriting "ideas and dreams," and, as GoFundMe's co-founders, Andrew Ballester and Brad Damphousse, once put it, "for life's important moments."

United-states , Portland , Oregon , Colorado , Denver , American , Tim-cadogan , Andrew-ballester , Brad-damphousse , Carol-justice , Mary-lou-retton , Kff-health-news

Hawaii's newborn screening adds two more genetic disorders to test for

Babies born in Hawaii will now be screened for two more genetic disorders. They are Spinal Muscular Atrophy (SMA) and Adrenoleukodystrophy (A-XLD).

Washington , United-states , Hawaii , Honolulu , Reben-frescas , Dana-mulcahy , Kaui-rezentes , Ava-rezentes , Department-of-health , Island-news , Spinal-muscular-atrophy , Va-rezentes

It's Finally Over for Aduhelm, the Sketchy Alzheimer's Drug Everyone Hated

The FDA approved Biogen's $56,000 anti-amyloid drug in 2021, against the advice of outside experts.

Massachusetts , United-states , Japan , Japanese , Priya-singhal , Drug-administration , Unlike-aduhelm , Aduhelm , Ketchy-alzheimer , Iogen , Riya-singhal , Ood-and-drug-administration

Meet Benjamin Lou, the 20-yr-old 'Asian Stephen Hawking'

A 20-year-old MIT student has been dubbed the "Asian Stephen Hawking" for defying physical limitations imposed by spinal muscular atrophy (SMA) to achieve academic excellence and make groundbreaking strides in mathematics and physics. Triumph over adversity: Benjamin Lou was just 6 months old when he was diagnosed with SMA, a condition deemed life-threatening by doctors. Lou endured numerous surgeries and medical challenges throughout his childhood, with his mother, Jenny Huang, becoming his dedicated caregiver.

United-states , Stephen-hawking , Benjamin-lou , Alan-guth , Jenny-huang , Netflix , Alibaba-world-math-team-competition , Triumph , Young , United-states-mathematical-olympiad , May-december- , With-guth

Kerala Govt Responds To SMA Patient's Plea Against Exorbitant Prices Of Life-Saving Drug, Says Medicine Free For Children Below 8 Yrs

The Kerala High Court today appreciated the initiatives taken by the State government in supporting minor children suffering from Spinal Muscular Atrophy (SMA) by providing medicines free of...

Kerala , India , Vidya-kuriakose , Justice-devan-ramachandran , National-policy-for-rare-diseases , Spinal-muscular-atrophy , Government-pleader-vidya-kuriakose , Central-government-counsel , National-policy , Kerala-high-court , Erala-hc , Pinal-muscular-atrophy

Novartis Returns to Voyager Therapeutics to Reach New Gene Therapy Destinations

Novartis is paying Voyager Therapeutics $100 million up front to collaborate on gene therapies for Huntington’s disease and spinal muscular atrophy. The deal builds on a relationship the companies started in 2022.

Switzerland , Massachusetts , United-states , Swiss , Neurocrine-biosciences , Fiona-marshall , Pfizer , Novartis , Voyager-therapeutics , Weight-loss , Besity , Verweight

Patient-specific muscle models pave way for personalized neuromuscular therapies

Scientists have so far identified around 800 different neuromuscular diseases. These conditions are caused by problems in the way muscle cells, motor neurons and peripheral cells interact.

Berlin , Germany , Max-delbr , Alessia-urzi , Mina-gouti , Disease-lab , Helmholtz-association , Nature-communications , Stem-cell-modeling-of-development , Molecular-medicine , Stem-cell-modeling , Amyotrophic-lateral-sclerosis

Lancaster County community raises money for boy with a rare spinal disease

Kayden Murry has spinal muscular atrophy, which is a disorder affecting the motor neurons, nerve cells that control voluntary movement.

Kayden-murry , Charity-grove-fifteen , Charity-grove , Lancaster-county , Square-mile-public-house , Johns-hopkins-medicine , Lancaster , Ountville , Ommunity , Inner , Undraiser , Are-spinal-diease