Page 2 - Todd Feltner News Today : Breaking News, Live Updates & Top Stories | Vimarsana

Reality. >> it's his hope. i let him have that hope that some day he will get to lead a normal life without this struggle. >> while children with epp do struggle, there's another disease out there that's more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >> i don't think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert sun of st. george, utah. that's where her family's remarkable story begins, a jour...

After three of their four children were diagnosed with xp, a deadly genetic disease that forces their children to avoid sunlight, jennifer and todd feltner said they were done taking risks. >> we should not go to vegas. we don't roll the dice well. >> but despite taking measures to avoid a pregnancy, jennifer discovered she was carrying a baby yet again. though there was a 75% chance that her child would not have the disease, jennifer was almost resigned to her family's extraordinary bad luck. >> had him tested at birth and this time, we got our 75% chance and he didn't have it. >> no xp? >> n...

>> it's his hope. i let him have that hope that some day he will get to lead a normal life without this struggle. >> while children with epp do struggle, there's another disease out there that's more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >>y think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert sun of st. george, utah. that's where her family's remarkable story begins, a journey with twists ...

A deadly genetic disease that forces their children to avoid sunlight, jennifer and todd feltner said they were done taking risks. >> we should not go to vegas. our odds -- we don't roll the dice well. >> but despite taking measures to avoid a pregnancy, jennifer discovered she was carrying a baby yet again. though there was a 75% chance that her child would not have the disease, jennifer was almost resigned to her family's extraordinary bad luck. >> just have him tested at birth, and this time we got our 75% chance, and he didn't have it. >> no xp? >> no xp. >> this is their youngest child, p...

Struggle. >> while children with epp do struggle, there's another disease out there that's more serious, more deadly. for this young girl named paris, every drop of sunlight that touches her skin is a matter of life and death. >> i don't think people understand the severity of it. not to get morbid, but i could potentially die. >> going out at night is the easiest way for paris to avoid the hot desert sun of st. george, utah. that's where her family's remarkable story begins, a journey with twists and turns that no one could have anticipated. >> we had to flip things upside down. >> jennifer a...