Review All In For Erwin - Community-service in South-andaman

All In For Erwin - Community-service in South-andaman

Others

South-andaman, Others

Andaman-and-nicobar-islands, India - 744104

noreply@vimarsana.com

Detailed description is This is a page to show support for Erwin and be updated with the efforts being done and needed for Erwin and his family.. Reposting Erwin's Mum's open letter (shortened):. . Dear family and friends,. . I am writing this letter to ask for help for my son, Erwin, who is in need of a kidney donor. Our family migrated to the United States from the Philippines in April of 2002 when Erwin was about to turn 21. We have been residing here in Murrells Inlet, about 10 miles south of Myrtle Beach, South Carolina for the past twelve years. Erwin is now thirty-three, still single, and counts on my husband, myself and his four other siblings, as his main supporters. In the past six years, Erwin’s health has been slowly deteriorating. He has been diagnosed with Focal Segmental Glomerulosclerosis (FSGS) and his doctors have said that he is ready for a kidney transplant.. . Focal segmental glomerulosclerosis (FSGS) is described as scarring in scattered regions of the kidney, typically limited to one part of the glomerulus and to a minority of glomeruli in the affected region. FSGS may result from a systemic disorder or it may develop as an idiopathic kidney disease, without a known cause. Proteinuria is the most common symptom of FSGS, but, since proteinuria is associated with several other kidney conditions, the doctor cannot diagnose FSGS on the basis of proteinuria alone. Biopsy may confirm the presence of glomerular scarring if the tissue is taken from the affected section of the kidney. But finding the affected section is a matter of chance, especially early in the disease process, when lesions may be scattered.. Erwin’s diagnosis has been confirmed through kidney biopsies... Since idiopathic FSGS is, by definition, of unknown cause, it is difficult to treat. No universal remedy has been found, and most patients with FSGS progress to total kidney failure over 5 to 20 years. Some patients with an aggressive form of FSGS reach total kidney failure in 2 to 3 years. Treatments involving steroids or other immunosuppressive drugs appear to help some patients by decreasing proteinuria and improving kidney function. But these treatments are beneficial to only a minority of those in whom they are tried, and some patients experience even poorer kidney function as a result. ACE inhibitors and ARBs may also be used in FSGS to decrease proteinuria. Treatment should focus on controlling blood pressure and blood cholesterol levels, factors that may contribute to kidney scarring.. . Last month, Erwin and my husband, Greg, met with the medical team attending to him at the Medical University of South Carolina to be evaluated and went through the necessary testing to determine if he is eligible for the kidney transplant.. We are reaching out to the community with my request for a Living Kidney Donor. Erwin's need is for a living donor for his kidney transplant. I would like to let you know about Erwin's current health challenge, and how you can help. This is not an easy letter for me to write, but I know that without sending this, someone who might be interested in helping will not have that opportunity.. Erwin's Medical History. Since early 2011 when he was first diagnosed with kidney failure he has been doing everything he can to avoid having his kidney deteriorate or eventually to go through dialysis. But, now he has no choice but to get a kidney transplant. Erwin needs a new kidney, and we are looking for someone who would consider being tested to be a donor. I am one of the people who cannot donate due to the fact that I had breast cancer ten years ago and I've gone through chemotherapy and radiation and so I've been eliminated from the list of possible living donors. What a devastating blow for me as his mother! My husband, Greg, Erwin’s father, is diabetic and is also not qualified to be donor. You may not be aware, but there is a 5 to 10 years of waiting time to receive a deceased donor's kidney.. Why Use a Living Kidney Donor. There is a benefit to receiving a kidney from a living donor. The benefit is with receiving the kidney from a living donor the kidney lasts twice as long as one that is received from a deceased donor.. Since Erwin will have no choice but to go on kidney dialysis eventually, his life will be extremely difficult. Erwin's life as he has known it, has gradually changed significantly. Our family’s goal and wish for him is to have as much as a normal life as possible while we reach out to people seeking a new kidney on his behalf. We know this is a big request. But we are making it on behalf of someone who devotes every day of his life to making a difference to his family and friends. Erwin's blood type is O.. If you can help, please do. If you know anyone who might, please forward this on! Forwarding this to your family, friends, work, school, or any other communities you belong to would be most gratefully appreciated. If you would like to learn more about living kidney donation / living donor program, please feel free to call me at: (843) 357-6103 (home) or (843) 651-2006 (work). You could also call Sara Parker at the Medical University of South Carolina, the Living Donor Coordinator and assigned social worker for Erwin, to have a confidential conversation and get answers to any questions you may have. Her contact information is 1-800-277-8687 or 843.792.4722 or email:burbages@musc.edu / muschelath.com/livingdonor.. . Secondly, Erwin had no insurance previously and had to acquire the mandatory insurance as mandated by President Obama. He is not qualified for Medicare nor Medicaid. We are right now having a hard time trying to think of how to pay for his medication and the transplant surgery. After doing research online and talking to counselors at MUSC, we realize the transplant, after care, and new medications, particularly the anti-rejection medication, will be extremely expensive.. This is an excerpt from the kidney website:. It has been estimated that first year cost of a kidney transplant is $116,100. Medicare covers all reasonable expenses with the exception of the Part A deductible and the Part B 20% co-insurance. Remember that you must think about the 20% cost of surgery and immunosuppressive medications if you elect to have only Medicare coverage, and those costs add up quickly. If the patient has a private primary insurance carrier, transplant benefits should be verified prior to evaluation, including information on deductibles and co-payment requirements. It is necessary for every transplant recipient to take several different medicines to keep you body from rejecting or damaging the new kidney. Currently, Medicare covers immunosuppressive medications for three years after kidney transplant for End Stage Renal Disease Patients (ESRD) patients. Congress has extended this coverage for the life of the transplanted kidney if the patient is eligible for Medicare due to age, or receives Social Security Disability Income (SSDI). The annual cost of immunosuppressive medications is estimated to be approximately $20,000.. . Under recommendation of our social worker at MUSC, it was suggested that we gather our support group now and start raising money to cover medical expenses not covered by his insurance / Medicare. Any donation or support would be greatly appreciated.. . We are also looking for volunteers to help us with planning fundraiser events. One of the ideas we are considering includes a performance by my dance students (I run two dance studios here in the area but am not able to help financially with Erwin’s expenses as much as I would want to). Any help and ideas you would be able to share would be greatly appreciated by our family. Also, by copying this letter or spreading the word to your family and friends, we can raise awareness of this disease and support for him.. . Reflecting on Erwin’s battle - the one thing I believe that is keeping Erwin going is his serene and joyful spirit and positive attitude. And for that, I am so amazed at how he is taking what is going on with him right now. Once you meet and get to know him you cannot help but love him. He is a very good man and is very much loved and respected by our family and his friends. He is a very soft-spoken and unassuming person. He is one who is contented with what he has and what God has given him. He never would ask for something beyond our means. . His silent courage and bravery in the midst of his battle with this kidney disease has been very daunting, overwhelming and very terrifying to me as a mother who is so afraid of losing her own child. Despite his illness, he does not seem to be broken. He is inspiring me to try to do as much as I can to make sure he gets the help and support he needs.. []. Please find it in your heart to help with Erwin. Again, we ask for your help, every little help will count and go a long way and would be deeply appreciated.. Looking forward to and with heartfelt thanks,. Liza Mata, . Mother of Erwin Mata, future kidney recipient. My contact information is: . Email: liza.mata@gmail.com. Phone No. 843. 357.6103 or 843.651-2006 / 843.8395678 (work phones)

Established in the recent years All In for Erwin in south-andaman, andaman-and-nicobar-islands in india.

This well-known establishment acts as a one-stop destination servicing customers both local and from other parts of the city...

Frequently Asked Questions About This Location

Qus: 1). what is the mode of payment accepted ?

Ans: Cash , Credit Card and Wallets

Qus: 2). What are the hours of operation ?

Ans: Open all days from 9:30 to 8:30 and exceptions on Sundays