Multiple sclerosis is a debilitating and cruel disorder with no known cure. Now a russian doctor is providing hope performing stem cell transplants on foundations of patients people are traveling from as far away as australia biggest fear right now is the m. S. Progressing may getting another episode of my results in further disability god knows what that disability could bring. Thats the scariest thing. But the covert 19 pandemic is throwing up unexpected challenges theres really nothing. Scheduled. 101 east follows 2 men risking their lives for treatment on the other side of the world. Once upon a time before our world was turned upside down parents like money and nick taria de moss took their kids to play sports on the weekend. The common core of it was before we shunned handshakes and hugs. When we could hold our grandchildren close so little are. You training here youre training him up down there. Are you going to try to tell him. Nick practically grew up his dad was one of the club founded its now he and his wife. Taria come to watch they 2 sons trying. To your old achilles you take a brother in the future what you want to ensure your old. Are you. Pretty much everyone is related to me. That a curious. George of his dad. Might tony. So we all grew up together would school together. Side. By sickly parents from the same village where. Theyre all desperately worried about nick not 2 years ago when he was 35 he was diagnosed with relapsing remitting multiple sclerosis. Nicks diagnosis turned his world upside down im just roommate and 3 year old just one brother in law washed down just knew there was something wrong when they so told us youve got a mess. And so long barrels in the hand going and you just think any self is no cure for this in a just going to the cliff in a wheelchair i remember screaming so. Saw the front of the box or hospital. Since then nicks been plagued by fatigue migraines blurred vision pain and numbness in his legs and dread about what still lives in store as we go to call her last year in a weeks time hes supposed to fly so moscow for a stem cell transplant a treatment that halts the progression of the m. S. In about 80 to 90 percent of cases like nicks going to be. Variant. There over there only one friday. It involves chemotherapy which will suppress his own system amis is an auto immune disease which means nicks immune system doesnt just defend him from infections it attacks healthy cells. No one knows why it happens but m. S. Damages the protective coating on nerves in your brain and spine causing lesions nick has more than 50 these distorted messages from the brain to the rest of the body sometimes leading to severe disability. Theres no known cure. For stem cell treatment blood to stem cells are removed from your bone marrow day and the high dose of chemotherapy is used to knock out your immune system which is the source of the m. E. s and then your stem cells are real and fused rebooting your immune system although the treatment doesnt claim to reverse the damage done by m. S. Some people get lucky. Stem cell transplants known as h s c. T. Have been very successful in Clinical Trials especially for young patients with relapsing remitting and mass. But the treatment isnt widely available anywhere in the world. And although nicks current neurologist supports its plans to seek treatment abroad he says most dismissive sascoc to many of my previous amass neurologists about i just say today they were all against it some of the feedback i was getting was not its not proven its still being tested dont do it its going to kill you this is tech for deron it was offered the standard 1st line of treatment for his game ace drugs its a can for relaxing and thats the part i only sleep in welcoming lesions continued. In australia Clinical Trials to stem cell transplants only accept people who failed to respond to multiple drug treatments nicks been told he doesnt qualify because he hasnt tried and failed at least one other drug i guess. Were just frustrated frustrated that theyve been doing a trial in australia since 2012 and not allow a miss patients to jump onto this and reap the benefits of it and force us to go abroad for treatment. While nicks getting ready for his trip to moscow i learned that there are already the forests trailing in the us with a mass killing stem cell transplants at the. Hospital. Americano. Around a 1000 foreign patients have received stem cell treatments here each around 80000. 00. Michael jones from brisk been is the most recent arrival he garcia on the 10th of march the day before the World Health Organization declared covered 19 or a pandemic so tell me about coronavirus how did you feel heading over to russia when it was already around in ways i dont particularly or was that here we were and i. Shout it out west where us are headed out of here right significantly worse and i dont right now. Can we just leave there for. Justice Shawn Michaels treatment will last another month and like nick he feels this is his only hope of stopping his email. World wide area. And nick taria a deuce of a moscow in 3 days time theyve already started packing but they wont count. To some worrying news have you heard that it closing the borders for straining russia. And i often think they are discovering that there are no certainties as the pandemic becomes real at this stage everything is up in limbo just waiting to the hospital to august break in advance of next steps. The hospital in moscow finally contacts nick to confirm the bad news and the stage. Lets delay but well find out a date when situation is stable again it will work normally we will accept you we now 1st group of patients when restrictions will be cancelled. He said quite an emotional roller coaster its stop and heads about to explode so close to getting this thing done now just looks like so far away and. Whats your biggest fear right now. Because fear right now we see a mess progressing may getting another episode that may result in further disability god knows what that disability could bring. Thats a scary scene. But what he hopes. To be i cant follow nick to russia anymore. But im still keen to follow michaels progress as best i can from my home in melbourne so how you feeling today what stage of the treatment to us. And there. Has been a great notion. This is dr Dennis Federico experiment is there a russian hematology just who is revealed by the thousands of m. S. Suffer as hes treated other yards. Hes the reason michaels in moscow. Oh hello. I hear you and i see you im sorry i cannot be there to meet you in person or. To meet your person of your cool and i am really good to answer all your questions sometimes in the media this treatment is described as a miracle cure do you think that maybe some patients come to you and the expectations are too high they think that it can cure them multiple sclerosis all bushels of this this is not the 100 percent successful treatment their last 30 stick around fortunately surround them and this is. Birth with the road to those embryos. If. It was bumpy from the results that you were just this treatment is much more effective. So i prepare for stem cell transplantation the last part of the process it doesnt sound so if i see from the paper calls for me doesnt stop me doing this to be on us. Even in russia there is resistance to stem cell transplants as a 1st line of treatment to m. S. Patients its only available free to a handful of russians in rolled in Clinical Trials your Blood Pressure is also high and. While. Problems dr fenner nko is frustrated by how difficult it is to win over the medical establishment well done. Yes why do you think everywhere in the world this is still considered an experimental treatment what is the resistance lets go further a should be to be especially as big goals as it is this is your origin girls at the mill this human toll would you go also. Maybe a pharmaceutical business because you know this week after dissolved all the minus trial reach go where. They still knows them both is many different drug business and really can in your opinion trial by ambush last year so that was fun days and is much more a fair share of the day after michael stem cells are really infused is a special ceremony to mark the rebirth of his immune system. Quad amado. He pours out the dry ice used to store his stem cells before going into isolation where hes safe from and for. Action while his immune system recovers all. You want. I mean die for. Trucks a lot of blood counts a whole bustles of things. Why he insists and his is officially dead as a doornail. When michael arrived in moscow it was very few reported cases of to run a virus in russia and its government didnt seem too concerned. That strange now since michaels gone into isolation moscows gone into lockdown whats the news whats happening its been nice lots whatsoever in or out of russia at the moment so this is literally no way that you can get on a plane and get back at the moment theres really nothing theres not one single flight scheduled you know and what do you know about what will happen when your treatment ends and you stay there the problem now is that this is what he will start taking on coronavirus pressure switch to a group with no i mean system is a scary situation. Maybe a hotel in moscow or somewhere its all really a you know i could deal with the kind of the 19 issue on a flight because that thats a tangible living in a hotel unprotected for a month in a foreign country totally different paradigm. To. What anything else. You take can michael. Thanks once. Youve got a bit of. Hair loss going on there it seems have an awful lot of hair loss going on. I havent shaved thats just career. So the last time i spoke to you you were a bit strange because you werent sure what was going to happen when the treatment finished. You got some other options or. So whats happened with organized approach at. The. Start dont. Know dr phil or in michaels time in isolation is due to end today. Dr fenner nko keeps a close eye out for any sign that his immune system isnt recovering as fast as it should i was my blood today is. Your blog is. My. X. Was just 2 days ago michaels immune system bottomed out and he needed a blood transfusion if it hadnt balanced back it wouldnt have been safe to travel. As you say if. They had to go in just 3 more days michael will be heading home. So a good. Ride from london hes got a ticket book to perth and then on to brisbane and the fact that you reckon you can be home by next weekend is is amazing its amazing yeah yeah it really is nice im lucky that ive got a farm as we get most of there is no bitch in fact the flight to london is costing michael 20000. 00 well nice to see you again a nice to see you smiling michael. Michaels wife has been trying to move heaven and earth to get him safely home dont doubt it have a drink you wont shes the charter flights and special permissions from michael to bypass quarantine and you look really good. You really do you look like youre ready to rock n roll. I cant wait not long now. Yeah. You know what you do the same for me. But. I love hearing i absolutely love you in you know what i like i said go to the end of the earth. Its right hold it together well talk about this light a just Mission Mission impossible going and we can cry at the end ok. All right i love you stay strong. By. Sometimes it really hard to sustain a really strong. You know behind saying. Ill never hear. Your story nor mow them or shes just here. Although it was there because the governor also. Ok just said i had a video of a doctor. It went really well. You know how before you view your home. All that 1st phone. In your life. Treatment on prototypical for the morning. Fredricka. He was going to. At least michaels not alone hes traveling to perth with jason toohey another a struggling and patient of dr feder encodes. For right here. Our. The focus until now has been on finding a way out of russia. There is a city or a. Record. Of a god but michaels wife rachel knows that theres nothing remotely saif about traveling during a pandemic with the suppressed immune system and. I say that i am not planning on arresting. That. And i just write im writing on our. Right. I caught me. Asking how i made. The 1st street goes without a hitch next is a commercial flight from london to does. So i had to have her. Throat as a. Sort of wire from her true. For being good enough to separate us. From more. Probable. In doha its on to flight number 3 headed for perth. One of. Wrong. I think there are legitimate right. But theres been another setback the flight to brisbane has been cancelled. Michael can only get home if he hires another private jets at a cost of 30000. 00. From a good. Bit of progress but. Just landed in. Sucking. Eat sleep the spirit of adventure. Charming armored. Car. A month after they were supposed to travel to russia i catch up with nic in the tyrion again if you like my fellow like me its Easter Sunday for all the Greek Orthodox families who live around the and everyones trying to celebrate to get on well keeping distance so were going to attempt the traditional great dance by my side so one and i have made is apart from each album that i got her without having. A. Surprisingly there was a Silver Lining to the pandemic for the de moss family talk run of ours will think its its forced us to actually see. Are down and just enjoy time with the kids and your family tony so all in all actually being good its being really good to slow down. That intense. No stress when im not working and. You dont have the everyday stresses of walk. With borders closed indefinitely it could be a long time before nic can travel to russia. Its a difficult one of the long. As much as its nice to slow down when you put it into perspective these things take some of the. Who knows whats going to happen with their finances and Everything Else and your mam and this is difficult compiling it and i will tomorrow brings. Perfect nick and nick taria has heard about michaels ordeal getting back from russia. I look at that case though and i think hes so lucky hes so lucky that he got in he did the trade and hes got a very high chance of actually getting his life back now as painful as a was going through the journey i wish i was in that case so we flew over to russia awaken to beforehand i would happily go through that kind knowing that its actually going to stop my amisse. Than waiting around for another here also not knowing whats murmurings. They wish that people like nick and michael could access stem cell transplants without taking unnecessary risks. A real option to give people an option to actually get their lives back the reason q are at it and i wish one day there will be for him inspections but right now the best course of treatment is i just say to you so try to release a pool if finger out and give that option. Dont force us abroad. One of australias most love making and im the one that is under threat from an agonizing to say one wildlife campaigner is dedicating your life to save one i want to east makes the woman who spoke with 0. Frank assessments what are you seeing in this 56 percent of police. Life being slipped through and indepth analysis of the days global headlines inside story on al jazeera off to 2 years in office has the pakistani Prime Minister delivered on his promises of freedom of speech its now being curtailed under your watch with the Prime Minister. Watch as the evidence then you just talked earlier to stans Prime Minister imran khan talks to aljazeera. Better rush mystify heavy security and a new wave of protests against president alexander lukashenko. And im adrian from again this is al jazeera live from doha also coming up trying to end a decade of fighting libyas rival factions hold talks on the rocco head of un back because he is in geneva. 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