Always deadly life will. Be in good shape meats and so low and downhearted learmonth answer is just 30 but hes already been fighting cancer for 16 years. Is his doctor put the sherry to University Hospital in berlin. Im a plussed hold my sit down patients manage into close touch a job a diagnosis i counsel into their lives and to leave a quite normal life. When you are young they are a lot of things in your agenda. Your 1st job and your very 1st own apartments but when youre diagnosed with cancer everythings on hold your whole life needs to be reorganized. Thats. The worst part for me was not knowing if to survive. This cancer by the umbrella if i was going to get as old as i thought i would. And we as a concern was how long will it take the lying about us cancer on sunday when i might be able to lead a normal life again and put it behind me when will i be able to forget it and write that my thoughts come. Over a 1000000 young adults develop cancer every year at 13 its 26 years old in 2018 a gene mutation caused her to develop Breast Cancer she was making plans for her future then suddenly she was dealing with surgery treatment and fear. And past company i thought if im unlucky ill never be healthy again f. Im unlucky all dying before i get my College Degree before i can become a teacher before i can have a family i didnt want so i said to myself i have to do Everything Possible to make sure that doesnt happen thats the. Catch i mean i had been looking forward to qualifying as a teacher and starting work but it wasnt school that she went to every day it was the clinic. Ive found it was an incredibly dramatic experience for me being so happy that i could finally start my teaching internship i was so close to finally being able to start my dream job but then cancer got in the way. No knows the problems that young Cancer Patients face the oncologist at berlins sharia to a hospital also works for the German Foundation for young adults with cancer the Organization Helps those affected and is committed to helping raise public awareness. Mr belonging to we have to take into account fertility issues we also have to factor in that young patients might not stick to the Treatment Program because they simply dont want to go to the clinic every 3 weeks. We have to keep explaining to them that they need to follow the treatment schedule which has to be very strict and its something that presents a big challenge for the medical team as well. That. You know also suffers from a matter of balik disorder which forces her to keep her arms and legs covered but shes determined not to be defeated shes also helped by her work at the foundation for young adults with cancer. When they could but i think it gives me so much. On the one hand thanks to be exchanged with other patients. Thats what ive had and also just because we have a lot of fun together we dont feel that cancer dominates our lives. But if we can get together and laugh about it. The one who can. Catarina chose to have both breasts removed she underwent chemotherapy and hormonal therapy that induced many of us but me of us with a sister just kind of physics again in my case the many poles resulted in a complete loss of libido. But i just think it has a very negative effect on your sexuality there is just so many side effects that can mess it up look at this i was lucky that my boyfriend stuck with me but as a young person as a young couple you want to be able to enjoy life and love and not just doesnt work nothing works and. Caterina would like to have children but the treatment can damage the ovaries shes had her eggs frozen to use later in spite of the uncertainty she hasnt lost her love of life the tumor is gone shes going to teach and shes making plans even though she knows the cancer could come back if mecca for me said i feel that ive become much stronger in many ways i somehow feel more grown up even though ive been thrown back a few steps in a way im a bit like a child again because i need peoples help. But ultimately i feel more mature stronger and i know that there are more important things in life than all the Little Things that used to get me upset and then get someone to panic like that im going to meet the burden Charity Thanks for meeting me today. Youre a cancer patient so you developed cancer when you were 14 years old and now youre 30 and you still have liver cancer so how do you see today if you were really great actually a lot like. Thinking about too much every day its want. Commanding every minute or demanding every minute every 2nd of my day im aware of a lot of the disease and im coping with it its not like its. Its controlling my life its not controlling your life i mean its more than half of your life it should be at 60 years youre a cancer patient so all hope was that for the 1st time the doctors were telling you the diagnosis. Actually needed was because between the diagnosis or the. Suspicion for the 1st the 1st signs that i have the cancer in the liver and the 1st surgery there was about 2 days so it was really fast and even after the surgery because of the subject of the surgeon come come can come to me and said it went well we got everything out so and then it was like that that states that we have to know what to talk about again and like. 234 days they came to me came to me again and they said we have found. In lymph nodes cancer cells its very devastating i mean this is disappointing to get the truth you were cured and then they told you that the disease is still going and then this was not the only time you were real life with this disease was ongoing that it was part of all the years that yes yes so. Like in total. 666 times. 6. 00 to 6. 00 times including the original one and. Yeah it was like. There was the easier ones that got me got that got to take i got taking all of the massage really took like 2 hours and was done and then there was there was a long there was like 2 surgeries where the surgeon came to me. Before the surgery. We try our best and we if you dont think it you know it we close you up and so in this will the 2 times i was really. Not scared in the kitchen in the classical a way it was me it was more way off. Feeling lost or more like. Yeah so now its the 1st time i receiving. Drug therapy with mats and not getting cut open. Thats a surgical therapy. And its its the think its a good it is good thing. But it comes with its own set of problems but in all those 16 use of this diagnosis of this disease and youre still living your life i mean youre doing punk rock kind of a boost yeah so how does it help you you know. I am more like light. The whole mentality of punk walk so like being self depend and. Freedom loving and. Its all can be transferred into the coping with the disease you know like being being self dependent so i dont give in like im blind for everything i question things i want to know whats happening i want that the doctor is. Its like working with me and not working on me and freedom loving im not really free when im dead i can feel your spirit and its very late thing for me to hear this but. Im a father myself good to girls and for me as a parent. It would be a catastrophe. To learn that my child has cancer so even if you are a buddhist even if you do punk rock him how did your parents react to the diagnosis with my parents where. I had this rule. Nobody cries if im not crying so when my parents who are bad in the hospital it was really it was more a more positive than life negative i feel like life to inject this one almost more life a life demanding like who wants our life and our normal patterns are as closely as it as good as it gets the parents are the rock for you and when you see your parents are grieving really badly it affects you in a way you couldnt imagine for in the fights youre coping with this disease so this is the reason why its here we sitting at the study t. M. Bilin hes going to get you know therapy so what is immunotherapy. Vaccine that helps fight cancer. Teaches your immune cells to recognize chuma is more effectively and to attack them. Very your immune system could kill most kinds of cancer but often it cant keep up. Either the cancer is faster than the immune system or it can defend itself against. Into being in scientists the testing the effectiveness of the vaccine therapy in fighting were currently kenya. Before spring rolls from the top we believe the therapeutic vaccine could have a long lasting effect on the body for instance extended immunity against any residual income your cells we hope this protection could prevent a recurrence of the disease or you in his words from speed. Cancerous tumors form from the bodys own tissue their cells look almost exactly like healthy ones making it hard for the immune system to identify them thats why immune cells cant fight the chuma without help. The proteins on the surface of human cells are altered and these are the target of the cancer fighting leukemia vaccine. Every vaccine is tailored to each individual patient because every chuma is different. One advantage of vaccines that target cancer cells is that they dont have serious side effects. There is searches themselves produce the personalized vaccines 1st they look for the molecules that are only present in the cancer cells to do this they compare the cancer cells with cells from healthy tissue in that way they can identify the specific changes taking place in the leukemia cells. The test subjects receive 16 vaccinations over a period of 7 months after a while the immune system begins to respond it starts producing new immune cells that battle the vaccine and the cancer cells. Each dot represents a cell because thats the control group of us and this is the vaccine response you see up here there are a lot more cells than there were before. The results so far indicate a regular vaccine response in the blood of patients weve been treating and. This therapeutic vaccine is still in the Research Phase but another cancer immune therapy is already in use. Special molecules or check points on the surface of immune cells prevent them from attacking the bodys own tissue cancer cells protect themselves from the immune system by reinforcing this breaking effect. But new drugs called Checkpoint Inhibitors remove the breaks the immune cells abandon able to fight humans. But the unleashed immune system doesnt just attack the cancer cells it also attacks healthy tissue that can lead to side effects like joint problems and eczema. But it makes it possible to fight tumors that were previously considered untreatable. In the future cancer immunotherapy will play a greater role than it does now if everything goes well particularly all patients stand to benefit. Human immunotherapy could be used to treat a wide range of tumors in addition to surgery chemotherapy and radiotherapy immunotherapy is on its way to becoming the 4th pillar of Cancer Treatment. So this is where you do the infusion therapies so whats inside this container this is the foremost. Immunotherapy and what does it do to the system its quite novel approach we have mold for several years now that the patients in the same usually detect its own cancer or if immune system has a control level. The control level. Is kind of a break for the attack of the immune system so in this case it has a new direction but the controllers control it this infusion takes off the control for a period of time so we kind of loosen the break and then his only move to texas on cancer. And your student of Bio Technology yes so does it help in understanding the therapy and does it help you get. Yes this helps me to understand therapy but not like in a way that it helps you to cope with it its more like. In the way that i can im feeling like im more than a scientists. Involved in the whole treatment of the whole disease cancer and just the patient just being a patient so and when im here and im talking to a woman after the therapy or before its kind of nice to just to talk about my own desire disease and. Patient rather than talking about the whole spectrum of Cancer Treatment so what about it brings me to the side effects i mean you would call it there would be any serious side effects are there any side effects there are side effects at the moment i only have like a little rash little red dots. That are just like us and there are chinese borders and i have a couple of those especially well im a bally. They just look. Like a summit of limitation that its not really nice but its manageable. Yeah there are some other. Side effects that are more. Severe but now i dont i just dont have them so what kind of side effects can you expect and whats the danger of. Effect was our trip and were fact control of the immune system so the control the new system has in its health so we do loose and display immune systems can overreact and thats where the very severe ental called itis was having diarrhea and that thats when he called and for about 3 months we couldnt continue treatment until we had solved this problem he had to adapt his diet and after what he wants he felt well and continued fortunately doing the time so twitter was the disease was already controlled so it didnt affect the whole result and what is there to gain from this or if you can you really heal the cancer we know from other forms of cancer which we use this treatment that patients are not stable for more than 5 years so we know that they have a very prolonged effect hopefully and so as a model of these patients thus far the cancer is not to be curt we can find some evidence that he is in good shape just finished his studies so he has good quality of life and cancers controlled its controlled so its more like a chronic disease that i think is if its exactly that so we would say that we defeated the cancer since we find some evidence were always afraid that the cancer might we curve but so far of for the past like 12 months its completely stable and he has no symptoms so you dont really know whole to how long to continue the therapy could be for say very years we dont know yet we know from other patients that you cant stop for a while like another disease so we know that also was and so we had the wake of what 3 months and it did not affect the results the positive results but for the long term we dont know it well but there are other therapies and colleges looking into. As. I was pretty skeptical about the whole thing i wasnt convinced they could help it i just thought i had nothing to live for the doctors. Yanis y. To has Breast Cancer shes an outpatient at the k e n Teaching Hospital in essen in the Integrative Medicine unit where she receives mainstream care in combination with complementary therapies may need to address symptoms and side effects doctors have been a further help set up the unit. It is always open so its the kind of great fan of Integrative Medicine in general i think conventional medicine has its place and is important but i also think that your path medicine has a great deal to offer and its wonderful to be able to make that available to Cancer Patients as well. Acupuncture is used here to help deal with pain we can be deployed during a course of chemotherapy. And more and more studies show that acupuncture really helps with a range of side effects such as pain in the hands and feet nausea fashions hits of this has been thoroughly researched and we see it in our everyday clinical work which is insufficient. As chemotherapy has caused her liver values to soar and has to be suspended until they come down doctor prescribes an abdominal compress as he has this one we dont have to just wait and see if the body deals with the problem while we pulls the therapy we can actively support the process. We know that a compress on the liver boosts the livers metabolism so it might speed up getting the values back down to normal so we can resume the therapy yet it can also turn off if you dont. After 5 weeks the values have improved its possible but not certain that it would have taken longer without the compress. Is worried that her tumor has grown during the break in treatment shes about to have an ultrasound. You know expensive and im very nervous its all or nothing now has the chemotherapy worked or not use it to include food or to loose is the Surgical Clips where the cima was you remember that looks black now there is no tumor to be seen around the clip before its gone and cant be seen using now most of these are normal healthy structures with new connector. Growing. This is awful its clear the tumor is gone whats. Going is coming do you know mike you know this month or so this is. True if you look for a stream of tears of joy are important to him oh my gosh these results are fantastic in clinical terms we have complete remission its not means theres no tumor we cant hope for anything better. You have to be really strong i think i have been. There were bad days but i feel like i got through them. Before the ultrasound younus quite a feared the tumor might have grown in fact the chemo had evidently already obliterated it. The complementary therapies didnt target the cancer itself but we used to help her deal with side effects and support the therapeutic process. I must say i just met today and im very fascinated how hes coping with this diagnosis cancer is the usual approach of young patients its a very special situation for the some patients usually just for independent at this age build partnerships good studies or good jobs the coop with a family and so in this phase of independency they get dependent on medicine on people like me so its very difficult for them to integrate a business into a normal life especially with chronic diseases but im also very fascinated by these patients because also very mature more mature than their peers so what makes it so special to treat young Cancer Patients well there are several aspects one of them also asserts and now have an amount a multitude of informations available to just use to look into the internet whats available so we talk a lot of quantity of information that doesnt always mean quality so you will have to talk indepth and explain what you are doing well and says quite confident quite witty he says that a doctor has to earn the trust of the patient is he right its a little perky but its honest and honest this is the basis of a working patient doctor relationship since its almost i can handle it thanks so much for this very interesting talk and i have so many more questions to ask but now with the author sent me your questions by email. On an upcoming show well be talking about. Its consumed all over the world mainly in the form of wine and what effect does it have on the body sending your questions to in good shape but d. W. Dot com just right alcohol in the subject line were looking forward to hearing from. So right now after therapy how do you feel. Later today i will gets tired i will be tired the whole weekend its like alice. But kat its ok if somebody gets a diagnosis of cancer whats your advice for this patient yeah so i would say i. Try to depend on the families so what i say also saying to for support your family in the beginning of the disease savan you can. Be supported by your family and the latest date shows all when you get like. No other disease diagnosis of fossil fuel thank you so much for sharing your story with us and well see each other again next week and until then lets all try to stay in good shape and well have some astronaut is going to come its got to. Me. 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