'Changemakers' highlighting reality of rare diseases - The Avondhu Newspaper

17 'Changemakers' – individuals from all over Ireland living with a rare disease - are sharing their stories to promote better understanding and awareness of rare diseases in Ireland. Part of the newly launched campaign, ‘I Am Number 17’, Corkonians Joanne O’Riordan, who lives with Tetra-amelia Syndrome, and Ausra Buinauskaite, who lives with Gaucher disease are supporting the awareness campaign.

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