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CX Daily: Chinese With Rare Diseases Face Painful Predicament Affordable Yet Unavailable Drugs
Medicine /
Xu Kai and her family
smashed 1,000 boxes of tablets used to treat her 8-year-old daughter’s rare genetic disorder.
The latest shipment of the medicine, which Xu had been buying through purchasing agents since her daughter was born, turned out to be fake. Phony pharmaceuticals are just one of the problems that patients and their relatives face trying to get their hands on medicine for treating rare diseases in China.
Many of these drugs are cheap and readily available outside of China, but lagging regulations and the cold logic of the market economy have made them difficult to come by inside the country. The situation has forced people like Xu to turn to an unreliable network of sometimes untrustworthy purchasing agents to buy drugs overseas that they or their loved ones need to lead normal lives.
China plans to strengthen auto data management that may force auto companies to get consumers’ consent before using their driving-related data.
According to a statement released yesterday by the Office
From:ChinaDaily | 2021-04-28 07:13
The State Council, China s Cabinet, unveiled on Tuesday a high-level leading group to coordinate work related to the protection of minors among various government agencies, as well as judicial and other bodies.
Led by Vice-Premier Sun Chunlan, the cross-departmental group was created to better implement the newly revised Minors Protection Law, said a circular on the website of the State Council.
State Councilor Wang Yong, Zhao Kezhi, another state councilor and minister of public security, and Minister of Civil Affairs Li Jiheng are among the members of the leading panel of the group, headquartered at the Ministry of Civil Affairs, the circular added.
Sens. Cotton, Ernst Introduce Bill to Prevent Agricultural Tech Theft by Chinese Regime
A pair of Republican senators on Wednesday introduced legislation that seeks to establish an office of intelligence within the Agriculture Department to keep U.S. agricultural innovations from falling into the hands of the Chinese Communist Party (CCP) and other “foreign threats.”
The bill (pdf), named the Agricultural Intelligence Measures (AIM) Act of 2021 (S.4768), was introduced by Sens. Tom Cotton (R-Ark.) and Joni Ernst (R-Iowa). It seeks to establish an office within the U.S. Department of Agriculture (USDA) by amending the Department of Agriculture Reorganization Act of 1994.