Providers data-sharing ventures try to make patient data more useful, keep it safe
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Healthcare providers are moving into the complex world of sharing and sometimes selling patient data, but will have to address privacy concerns and maintain patient trust to be successful.
HCA Healthcare in January announced plans to share de-identified data on COVID-19 patients treated at its facilities with HHS Agency for Health Research and Quality and a consortium of universities for COVID-19 research. In a separate venture, 14 health systems including AdventHealth, Providence and Tenet Healthcare in February launched Truveta, a for-profit company that will aggregate and de-identify data from the founding providers for research.
All of Us Research Program resumes in-person enrollment at UAB
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Virtual presentation introducing All of Us Research Program set for Feb 24-25
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“We’re changing the paradigm for research,” said Josh Denny, M.D.,
All of Us’s chief executive officer. “Participants are our most important partners in this effort, and we know many of them are eager to get their genetic results and learn about the science they’re making possible. We’re working to provide that valuable information in a responsible way.”
The program’s in-depth genetic analyses include both whole genome sequencing and genotyping. Whole genome sequencing focuses on the more than 3 billion base pairs in the human genome, while genotyping looks at millions of genetic variants focused on people’s most common genetic differences.
February 14, 2021
By Raul DIEGO
Less than a month away from the one-year anniversary of the pandemic’s official declaration, policy wonks at the Atlantic Council together with former and current government officials are dissecting the “lessons” of the Covid-19 epidemic to advise the Biden administration on the steps to take in order to avert the next disaster.
Following a report by the Atlantic Council’s “Forward Defense” program housed within the Scowcroft Center for Strategy and Security published in October, a panel comprised of the report’s author Franklin D. Kramer and others, including former Deputy Secretary of Homeland Security Jane Holl Lute and Jaclyn Levy, Director of the Infectious Diseases Society of America (IDSA), discussed Kramer’s “key findings” and how these should influence White House policy moving forward.