Cure SMA
Biogen Provides SMA Community Update on DEVOTE Study
Below we have provided an update from Biogen regarding the status of its DEVOTE clinical trial. For more information about SPINRAZA (nusinersen), visit https://www.curesma.org/spinraza/.
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Biogen’s DEVOTE study is designed to evaluate the safety, tolerability, and potential for even greater efficacy of SPINRAZA when administered at a higher dose than currently approved for the treatment of spinal muscular atrophy (SMA). The Phase 2/3 randomized, controlled, dose-escalating study will be conducted at approximately 60 sites in 26 countries around the world, and aims to enroll 152 individuals of all ages with SMA.
Courtesy Arindam Roy
Nearly every morning, Sarmistha Sen went for a run before her children, Neil, 12, and Ryan, 6, woke up. Like every part of Sarmistha’s routine, running served a purpose in her life. The solitude of running on her neighborhood hike and bike trail with playgrounds on one side and a creek on the other, helped Sarmistha recharge from the demands of her busy schedule. Related Story
As her brother Sumit Sen says, running was her release, which helped her be present, connect fully to others, and embrace her daily purpose.
When she finished her run, Sarmistha would come home, make breakfast for her boys and her husband Arindam Roy, and then start her work as a clinical research manager at the University of Texas Southwestern Medical Center.
Abbott announces fourteen new Texas Medical Board appointments Eli Kirshbaum | Dec 17, 2020
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Gov. Gregg Abbott announced new appointments to both the District One and District Two Review Committees of the Texas Medical Board on Thursday. These appointees are responsible for evaluating medical practices in their respective districts.
Each committee consists of three physicians who are doctors of medicine, one physician who is a doctor of osteopathic medicine, and three members of the public.
Antoinette “Toni” Jackson
Jackson is an Attorney and Principal for the Banks Law Firm, and a Member of the Texas Affiliation of Affordable Housing Providers, Urban Land Institute, Texas Southern University Foundation, and Houston Habitat for Humanity
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