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Huntington s Disease: Families in Moray to form charity to help fight against genetic illness

© Shutterstock / Tashatuvango Thank you for signing up to The Press and Journal newsletter. Something went wrong - please try again later. Sign Up Huntington’s Disease campaigners in Moray want to set up a charity to provide more help for families fighting the illness. During that time the families have won support from several local businesses. Now they have agreed to form a charity as a branch of national organisation Scottish Huntington’s Association to properly manage the funds destined to provide vital support. Member Jock Anderson said: “We feel it’s the right time for this. It could open a lot of opportunities for our members.”

Irvine cop raises Huntington s disease funds with weight walk

AN IRVINE cop will be taking on a gruelling special forces-level charity challenge to raise funds for Scotland’s Huntington’s disease charity. Police constable Guy Jenner, 45, with his son Aidan and brother Robert Henry, will be walking 300km in 360hrs this week while wearing a 45lb backpack. The trio will competing in the Virtual Special Forces Inverse 360 Challenge to raise money for the Scottish Huntington’s Association – a condition which stops parts of the brain working properly over time. Whilst there are several ongoing medical trials, there is currently no cure or way to stop the disease. Constable Jenner said: “My mother-in-law sadly died from Huntington’s disease in 2017. My wife Carolyn Jenner, who was the full-time carer to her mother, took the brave decision to be tested shortly after her mum’s passing.

Mum won t let Huntington s stop her living life to the fullest

Mum won’t let Huntington’s stop her living life to the fullest Gillian McNab speaks out about the hereditary disease saying she can control what she does now. Julie enjoys a well earned glass of fizz after completing 100 dances for Huntington s (Image: rutherglen reformer) Join thousands of others in getting the stories that matter to you sent straight to your inbox.Invalid EmailSomething went wrong, please try again later. Subscribe When you subscribe we will use the information you provide to send you these newsletters. Your information will be used in accordance with ourPrivacy Notice. Thank you for subscribingWe have more newslettersShow meSee ourprivacy notice

Huntington s Disease: Sandy Patience refused to let lockdown stop him helping to find cure

Thank you for signing up to The Press and Journal newsletter. Something went wrong - please try again later. Sign Up For all of his life Sandy Patience has watched family and loved ones taken from him slowly by Huntington’s Disease. The genetic condition has no known cure and has a 50% chance of being passed from parents to children – but now the 58-year-old is helping to try and change that. Sandy, who is originally from the Black Isle but now lives in Inverness, has spent his entire life watching loved ones slip away before being diagnosed himself in 2017. Last year he lost his sister Helen to the condition, which causes parts of the brain to gradually stop working causing problems speaking, walking and swallowing.

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