Abe Deanda News Today

New guidance covers recommendations for surgery, imaging, family screening, and the importance of a multidisciplinary team

Marfan syndrome made my brother beautiful. Then it killed him. March 14, 2021 I was ten years and a week old when my brother Trey was born. We were poor, living in a single-wide trailer in rural Alabama coal country. He was a joyful baby, quick to smile and laugh. He and I bonded immediately — which was lucky, because we shared a bedroom (and bed) until I moved out for college at 18. As he grew up, it didn’t take long to realize what an entertainer he was — wickedly funny, an...