Former attorney works to bring resources to those with rare genetic disease
Mark Christman had people around him, but he still felt lonely. “When you have a rare disease, it makes you feel alone,” said Christman, who was diagnosed in 1977 with facioscapulohumeral muscular dystrophy, or FSHD, a genetic disorder that causes weakening of the skeletal muscles. “I had never met another
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Source: triblive.com