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International Niemann-Pick Disease Registry and Mandos Health announce new research collaboration using real-world data to evaluate the treatment effects of VTS-270 to manage Niemann-Pick type C1

International Niemann-Pick Disease Registry and Mandos Health announce new research collaboration using real-world data to evaluate the treatment effects of VTS-270 to manage Niemann-Pick type C1
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United kingdomConan donnellyToni mathiesonMandos healthPatient community engagement weInternational niemannNiemann pick disease registryInternational niemann pick disease registryExecutive officer conan donnellyCathy trazCommunity engagementPick united kingdomChief executiveEditors aboutClinician reported databasePatient reported database

INPDR: International Niemann-Pick Disease Registry and Mandos Health announce new research collaboration using real-world data to evaluate the treatment effects of VTS-270 to manage Niemann-Pick type C1

INPDR: International Niemann-Pick Disease Registry and Mandos Health announce new research collaboration using real-world data to evaluate the treatment effects of VTS-270 to manage Niemann-Pick type C1
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United kingdomConan donnellyToni mathiesonPatient community engagementInternational niemannPatient community engagement weMandos healthInternational niemann pick disease registryExecutive officer conan donnellyCathy trazPick united kingdomChief executiveEditors aboutClinician reported databasePatient reported databaseSphingomyelinase deficiency

BMS, GRYT Health collaborate on patient advocacy platform

BMS, GRYT Health collaborate on patient advocacy platform
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Cary adamsDavid craigAnthony evansPat garcia gonzalezBristol myers squibbNational black church initiativeRacial ethnic healthDrug developmentUnion for international cancer controlAdvocacy exchangeDmax foundationHealth equityHealth for the global virtual cancer conferencePatient expert engagement resourceCathy trazGlobal virtual cancer

Bristol Myers Squibb and GRYT Health Evolve Virtual Patient Advocacy Experience

Global advocacy platform born out of need during COVID-19 expands offerings with the goal of helping better support patients as they navigate health care systems Today, Bristol Myers Squibb and GRYT Health unveiled the “Advocacy Exchange,” an evolution of the existing COVID Advocacy Exchange, an enduring community built to support patient advocacy organizations by providing access to educational resources, .

David craigNina goworekBristol myers squibbSheila thorneRacial ethnic healthHealthcare disparities working groupAdvocacy exchangeHealth coMulticultural healthcare marketing groupCathy trazExecutive directorPatient advocacyBristol myersWorking groupWorking groupsEthnic health