Elloise Charles with dad Alan and her mum.
- Credit: Elloise Charles
A Noak Hill woman is raising money and awareness for a rare and highly misdiagnosed disease with devastating effects.
Elloise Charles dad Alan spent two years wondering what was causing his health to decline.
After a series of misdiagnoses, he was finally told he had, a rare and progressive condition, progressive supranuclear palsy (PSP), that can cause problems with balance, movement, vision, speech and swallowing.
Alan Charles suffers from rare disease, progressive supranuclear palsy (PSP).
- Credit: Elloise Charles
In the UK, around 4,000 people are diagnosed with PSP, but the number of sufferers is likely to be higher due to it often being misdiagnosed as other diseases such as Parkinson’s, says charity the PSP Association.