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Boy prepares for life without vision, plus twin heart surgeries and sleep tips galore

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My 8-year-old lost his vision — that s how I learned he has a rare dementia-like disease

Emily Blackburn, 33, a mom of two from Tipp City, Ohio, has virally shared her family's deep secret about eight-year-old son Grayson's Batten disease diagnosis, hoping to garner financial support towards his treatment.

Ohio boy, 8, prepares for blindness: It s heartbreaking, his mom says

Ohio boy, 8, prepares for blindness: It s heartbreaking, his mom says
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Ohio mom reveals heartbreak after son was diagnosed with DEMENTIA at age EIGHT - as she shared the subtle symptom that led to the nightmare diagnosis

Grayson Naff, from Tipp City, was diagnosed with Batten disease last year - a group of rare genetic conditions that cause the brain to gradually shut down over five to ten years.

Our son, eight, was diagnosed with dementia - we don t want others to miss the subtle symptoms

Batten disease affects about one in 25,000 babies and eventually sufferers lose the ability to speak, move, see and swallow, developing devastating dementia

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