Exceptional Access Program News Today

On my part . Congressman, the action that the administration took obviously was to try within the law, within the authorities we have to remove restrictions that we thought were counterproductive, and if anything working against the goal of getting the kind of change in cuba that we all want which is a Movement Towards giving human rights and other issues of importance greater attention. I think that, you know, the transactions between the u. S. And cuban parties will be governed by law so there...

Global News

- Albrioza now covered under province’s publicly funded drug program - The Ontario government is connecting people to a new treatment for those living with

Ontario will be the first province in the country providing insurance coverage for a new treatment for ALS.

A Cornwall, Ont. woman living with cystic fibrosis is fighting to receive coverage for a $308,000-per-year drug that could help treat her disease and save her life.

The family of a 30-year-old man in Thunder Bay, Ont., who's fighting a rare form of cancer is waging a battle of their own: Trying to get funding for his treatments, which cost $9,000 each.

Kelly Marchand of London, Ont., is thankful her seven-year-old daughter Charlotte, who has cystic fibrosis, is finally taking a prescription medication that some doctors describe as life changing.

Sara Aldrichs application for provincial coverage for Trikafta, which lessens CFs severity and slows its progression, was just approved.

Article content The family of a Pikwàkanagàn boy with a rare disease has learned that the cost of groundbreaking gene replacement therapy will be covered by Jordan’s Principle, a legal requirement that gives Indigenous children access to health and education supports. “We were crying, we were so happy,” said Dana Verch, the mother of 14-month-old Kevin, who was diagnosed with spinal muscular atrophy, on Dec. 26. We apologize, but this video has failed to load. Try refreshing your browse...

Article content Less than five days after an Eganville-area family launched a GoFundMe page to raise $2.8 million to pay for cutting-edge gene replacement therapy for their baby, the province has announced that it will pay for the drug on a case-by-case basis. “It feels really great. It gives us hope that the government realizes how important this is,” said Dana Pearce, the mother of 14-month-old Kevin Verch. We apologize, but this video has failed to load. Try refreshing your browser, or ...