The advocacy group BCEdAccess Society annually assesses how often kids with complex care needs are being excluded from the classroom and school activities and says the situation is worsening.
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Emma Miles worries about her brother Ethan, who is non-verbal and needs constant care. She is afraid her income won’t be enough to get him the care and resources he needs once he ages out of school. Her worst fear is that he will be abused in a care home.
Looking after Ethan isn’t easy, and he is entirely dependent on his family to advocate for him. It has been a full-time job for Miles, and respite care can be impossible to get due to the COVID-19 pandemic exacerbating old problems, and creating new ones.
“His world doesn’t function without us,” says Miles.