Trikafta was added to the pharmaceutical benefits scheme for people over 11 years of age a year ago. Now, it will be available at an affordable price for younger children too, in a hard-fought win for families.
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Jess Ragusa, from NSW s Central Coast, was born with cystic fibrosis, a life-shortening disease that causes cells to produce a thick mucus which damages the lungs and digestive system.
Despite health restrictions curtailing the ability to hold events or meet face to face at certain points over the year, LJ Hooker offices have still managed to respond to the needs of their communiti
Cystic fibrosis survivor calls for Trikafta to be listed on PBS
updated 23
AprApril 2021 at 3:55am
Kerrie Taylor lives with cystic fibrosis, but a new drug has made a world of difference to her health.
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Key points:
People with cystic fibrosis call for a drug called Trikafta to be included on the PBS list
Kerrie Taylor says her quality of life and lung function have improved since taking the drug
Cystic Fibrosis Australia says the drug could be a game changer for many
She was not expected to have a long life. There were lots of times that growing up you always hear that you might make it to 18, you might make it to 21, she said.