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BBCNEWS HARDtalk June 4, 2024 22:33:00

And a fully affected child โ€” me. but in average people, it is very rare. maybei in 20,000. sperm โ€” its usually sperm โ€” go different and, therefore, an achondroplasia child is born. you are an academic, and ethicist and you think about the very biggest and deepest ethical subjects that face us human beings. but this is also of course deeply personal. you have chosen to be candid and open about the very difficult emotional conversations you have had within your own family over the generation...
Human Beings All My Life

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BBCNEWS HARDtalk June 4, 2024 22:35:00

Yes. they can have a good life. and the thing is that if you look in the streets of our cities, you find lots of miserable people. they dont have my dna mutation, potentially, theyjust have hard lives and we can do something about that. were there societal pressures on you not to have children? yes, yes, there were. i remember when my daughter, when her mother was pregnant, there was an expectation, they showed that that pregnancy was affected by achondroplasia and i think there was an expectati...
All My Life Dna Mutation Theyjust Have Hard Notjust The Medical Profession

BBCNEWS HARDtalk June 4, 2024 22:48:00

For example, mostly we go out to work and we depend on a transport system. we depend on workplaces. they are not accessible. the transport system has to be, as it were, retrofitted to be accessible. if we got it right from the start then why would there be a problem? in our conversation at the beginning we focused mostly on inherited conditions and on baseline genetics but i guess the truth is that many people will experience what it means to be impaired or disabled not at the beginning of their...
Transport System Easter Weekend Guess What Able Bodied

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