Driven by a desire to find answers about her debilitating diagnosis, she and a team of research-savvy long COVID patients formed the Patient-Led Research Collaborative to advocate, educate, and to one day hopefully cure the disease.
Toronto, ON (PRWEB) December 15, 2021 Patients who have been hospitalized with COVID-19 have an approximately one in five chance of having lingering brain
Covid-19 patients are doing their own research
Citizen science, the name given to a range of scientific projects in which patients participate, covers myriad experiences.
(Bloomberg)
Amy Dockser Marcus
, The Wall Street Journal
To advance scientific knowledge of the disease, lay people are organizing to generate data about their experiences
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A month after her Covid-19 diagnosis last March, Lisa McCorkell wanted to know why she was still struggling with a cough, shortness of breath and other debilitating symptoms. Her doctors didn’t have answers, so she and a group of other Covid patients took matters into their own hands. They formed a research group on a Slack channel and launched their own study.
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