Page 11 - Helen Devos News Today

Whether it’s fashion, entrepreneurship, painting or cooking, Cynthia Hagedorn has done it all and continues to do so for the benefit of her community.

Alicia Moreno is looking for a kidney transplant for her five-year-old son Anderson, who's been on dialysis since February 2017.

Marley’s marvelous success New rare genetic syndrome goes from a collection of symptoms to successful treatment in less than two years Diagnosing a rare medical condition is difficult.  Identifying a treatment for it can take years of trial and error. In a serendipitous intersection of research expertise, an ill patient — in this case a child — and innovative technology, Bachmann-Bupp Syndrome has gone from a list of symptoms to a successful treatment in just 16 months.   The paper ch...

Child with Bachmann-Bupp Syndrome successfully treated in just 16 months Diagnosing a rare medical condition is difficult. Identifying a treatment for it can take years of trial and error. In a serendipitous intersection of research expertise, an ill patient in this case a child and innovative technology, Bachmann-Bupp Syndrome has gone from a list of symptoms to a successful treatment in just 16 months. The paper chronicling this lightning-fast scientific response to the Bachmann-Bupp Syndrome...

After four amputations and six months in the hospital, 10-year-old Dae'Shun is home in Shelby.

Milans Miracle Fund: Mission accomplished, but not over DIPG treatment research funded by Grand Rapids family through donations and last updated 2021-05-25 17:33:13-04 GRAND RAPIDS, Mich. — When Milan Capobianco got sick with cancer at just 6 years old, her parents thought for sure some hospital out there would be able to treat her. But Helen DeVos, Mayo Clinic and St. Judes couldnt treat Milans cancer. No treatment was available for DIPG, a rare brain cancer with no known cure. That was...

Two children hospitalized after drinking excess milk, causing severe iron deficiency Helen Devos Childrens Hospital admitted both children this week and last updated 2021-03-16 22:38:02-04 GRAND RAPIDS, Mich. — A local doctor is warning parents that too much cows milk for toddlers can be dangerous. Just this week, Helen Devos Childrens Hospital has admitted two young pediatric patients for severe iron deficiency, caused by too much milk intake. Dr. Deanna Mitchell, a pediatric oncologist...

Autman brought her son to the hospital where doctors proceeded to amputate his right leg due to a rare coronavirus-related illness called MIS-C.

Marleys family shares story during Rare Disease Week to raise awareness and last updated 2021-02-23 06:05:30-05 GRAND RAPIDS, Mich. — Tuesday marks the start of Rare Disease Week, recognizing the nearly 30 million people in the U.S. who are affected by a rare disease. Marley Berthoud of West Michigan was diagnosed with Bachmann Bupp syndrome. She was the very first human to be given that diagnosis, and since then there are now a few more people worldwide who have been given that diagnosis....

Parents of twins giving back to NICU team at Helen DeVos Childrens Hospital with Pillow Case Drive and last updated 2021-02-23 16:55:24-05 GRAND RAPIDS, Mich. — The Grand Rapids family who just brought their twins home from the NICU is giving back to the team at Helen DeVos Children’s Hospital. The Myers family is putting together a ‘colorful pillow case drive’ to flood the nurses with linens to use inside all of their incubators. Despite going through their own struggles, t...