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Indigenous Nations Are Fighting To Take Back Their Data

Indigenous data sovereignty is the idea that Indigenous Peoples should decide how to collect, own, and use their own data.

United statesKrystal tsosieArielle duhaime rossStephanie carrollArizona state university in tempeUniversity of arizonaBiodata consortiumIndigenous data governanceNative villageNative biodata consortiumArizona state universityIndigenous peoplesIndigenous data

Geneticist Krystal Tsosie advocates for Indigenous data sovereignty

A member of the Navajo Nation, she believes Indigenous geneticists have a big role to play in protecting and studying their own data.

United statesSouth dakotaSan diegoCheyenne riverPhoenix indian medical centerJoseph yrachetaJonathan kimKathleen dreierElloise tsosieKrystals tsosieKeolu foxKrystal tsosieClinical laboratory improvement amendmentsJohns hopkins universityTsosie lab for indigenous genomic data equityBiodata consortium

NIH Awards 9 Million to Research effects of Covid on Indigenous Communities

NIH to fund indigenous-led projects on disproportionate effects of COVID-19

United statesKrystal tsosieMatt andersonJoseph yrachetaNational institute of healthBiodata consortium nativebioArizona state universityUniversity of wisconsinNational institutes of healthNational instituteIndigenous led tribal data repositoryNavajo nationNative biodata consortiumNational institutesEastern bandTribal data

NIH funds $9M Indigenous-led Tribal Data Repository partly housed at ASU

The Rapid Acceleration of Diagnostics (RADx) initiative, an NIH program launched three years ago to improve COVID-19 diagnostics, has awarded $9 million to support the first Indigenous-led Tribal Data Repository in the U.S.“It's an absolutely beautiful way for not only respecting tribal data sovereignty, but also operationalizing that respect and giving us the exact resources

United statesKrystal tsosieBiodata consortium nativebioRapid accelerationIndigenous led tribal data repositoryTribal data repositoryIndigenous implementationsNative biodata consortiumNative americanNative americans

Your Capitol Hill health care playbook

Congress’ sprint to fund the government and preserve several health programs is officially on.

United statesCapitol hillDistrict of columbiaNorth carolinaNew yorkWhite houseJim rischr idahoJulie simon millerMeganr wilsonMatt eylesAlice miranda ollsteinMelanie fontes rainerKrystal tsosieBob menendezRebecca meyer schumanSophie turner

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