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Tragic disease robbing kids of memories, skills

Health by Danielle O’Neal Premium Content   When Noah Bevan passed away at 15 years old, the teenager had regressed to a developmental stage of about a one-year-old. The beloved son and brother from Warner, in the Moreton Bay region, had Sanfilippo Syndrome, a rare form of childhood dementia that causes progressive brain damage. There is currently no cure or approved treatment and the life expectancy for children with the degenerative condition is 12 to...
New South Wales Moreton Bay Catherine Mccoombes Peter Wallis Jillian Ogrady Julie Bevan

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