There are very few people in the country who understand the visceral pain of losing a legal fight to keep their child alive. Connie Yates is one of them.
Christians campaigning for greater transparency around decisions made in the care of critically ill children have expressed disappointment at the outcome of a review led by the Nuffield Council on Bioethics.
Mixed messages from different members of a healthcare team and a failure to acknowledge parents as experts in their own children are among the causes of disagreements that have led to court cases over the withdrawal of life sustaining treatment for critically ill children, a review commissioned by the UK government has found.
The review, conducted by the Nuffield Council on Bioethics, follows a string of high profile court battles in which parents fought to stop NHS trusts discontinuing treatment that specialists believed was no longer in the child’s best interests. Protestors picketed hospitals and harassed staff, and judges made court orders protecting clinicians’ identities.
During the passage of the Health and …
The Nuffield Council on Bioethics (NCOB) said the Department of Health and Social Care (DHSC) should create a task-force to implement suggestions - aimed at helping to ease distressing situations.