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ORDI s flagship run Racefor7 to raise awareness on rare diseases on Feb 25

ORDI s flagship run Racefor7 to raise awareness on rare diseases on Feb 25
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Better regulatory mechanism and patient registry; a must for rare disease management; experts at the IHW Council Rare Disease Summit

Better regulatory mechanism and patient registry; a must for rare disease management; experts at the IHW Council Rare Disease Summit
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New delhiPrasanna kumar shirolAnkita kumariMadhulika kabraGenetics subdivision of the department paediatricsIndia institute of medical sciencesOrganization for rare diseases indiaNational policy on rare diseasesRare disease summitIntegrated healthWellbeing councilGenetics subdivisionAll india instituteMedical sciencesKumar shirolAshoka fellow

Business News | Better Regulatory Mechanism and Patient Registry; a Must for Rare Disease Management; Experts at the IHW Council Rare Disease Summit

Get latest articles and stories on Business at LatestLY. New Delhi [India], July 1: The experts at the Rare Disease Summit emphasised the need for patient registry for accessible treatment opportunities for rare disease patients while deliberating on the various aspects of rare disease management in the country. The summit was organized by the health think tank, Integrated Health and Wellbeing Council in collaboration with AstraZeneca to create awareness on rare diseases and their effective management. Business News | Better Regulatory Mechanism and Patient Registry; a Must for Rare Disease Management; Experts at the IHW Council Rare Disease Summit.

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Basics of Rare Diseases - Types, Diagnosis and Treatment

Rare or orphan diseases are least understood of all chronic diseases. They are more common than projected and kill more people than cancer and HIV together.

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ORDI to hold Racefor7 to raise awareness about rare diseases - Jammu Kashmir Latest News | Tourism

NEW DELHI, Mar 6: In order to commemorate World Rare Disease Day, the Organization for Rare Diseases India (ORDI) would organise the 8th edition of Racefor7 on March 12 in New Delhi. The annual event by ORDI would raise awareness about the rare disease community and advocate better policies and access to treatment for rare disease patients. Speaking at the event, Dr Neerja Gupta, Additional Professor, Division of Genetics, Department of Pediatrics, AIIMS, New Delhi said “Rare diseases now have […]

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