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Perth parents spend four agonising months in the intensive care unit not knowing if their son would survive - after losing their first child to a rare but fatal genetic condition

Sarah and Brad Girvan, from Perth, got to celebrate their son Noahs first birthday in May, however it shouldnt have been until September after he was born 24 weeks premature at 688grams.
Western Australia Sarah Girvan Brad Girvan Fiona Stanley King Edwards King Edward

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