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United Nations Officially Designates September 7 as World Duchenne Awareness Day

United Nations Officially Designates September 7 as World Duchenne Awareness Day
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Noord hollandNew yorkUnited statesState of kuwaitNicoletta madiaTareq albanaiRasha alnaibariElizabeth vroomPermanent missionUnited nationsWorld duchenne organizationWorld health organizationProject muscular dystrophyWorld duchenne awareness dayDuchenne awarenessMember states

United Nations Officially Designates September 7 as World Duchenne Awareness Day

/PRNewswire/ Parent Project Muscular Dystrophy (PPMD) and the World Duchenne Organization (WDO), along with WDO s members and affiliates, proudly herald the.

Noord hollandState of kuwaitElizabeth vroomRasha alnaibariTareq albanaiNicoletta madiaWorld health organizationWorld duchenne organizationUnited nationsPermanent mission of the state kuwaitProject muscular dystrophyWorld duchenne awareness dayDuchenne awarenessMember statesPermanent representativeParent project muscular dystrophy

FDA Approves Marathon s $89,000 Muscular Dystrophy Drug

FDA Approves Marathon s $89,000 Muscular Dystrophy Drug
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United statesKerry mcnicholasTim cunniffDrug administration onChicago tribuneDrug administrationBabar ghiasParent project muscular dystrophyProject muscular dystrophySarepta therapeutics

Parent Project Muscular Dystrophy Provides $250,000 in Funding to Rare Disease Research, LLC to Establish New Clinical Trial Site

/PRNewswire/ Parent Project Muscular Dystrophy (PPMD), a nonprofit organization leading the fight to end Duchenne muscular dystrophy (Duchenne), today.

North carolinaUnited statesEdward smithEric caminoNhan phanHead of researchRare disease researchResearch strategyDuke children neuromuscular programProject muscular dystrophyDuke departmentsDuke childrenNeuromuscular programClinical innovationPrincipal investigatorParent project muscular dystrophy ppmd

Defeat Duchenne Canada and Parent Project Muscular Dystrophy Award $300,000 (USD) Clinical Fellowship in Duchenne Endocrinology and Bone Fragility

Award Will Support Two Fellowships Under Dr. Leanne Ward, Pediatric Endocrinologist-Osteologist and Professor of Pediatrics, University of Ottawa with Focus on Endocrine and Bone Complications of Duchenne

United statesRana hallounRachel schraderElisa mccoyKim phungBone consortiumUniversity of ottawaFamily forumAward will support two fellowships underLeanne wardPediatric endocrinologist osteologistBone complicationsProject muscular dystrophyDefeat duchenne canadaClinical fellowshipsDuchenne endocrinology